Skip to main content
  • Caregiver Community

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

  • Forget Us Not Handbook in English and Mandarin
    PatientsEngage is happy to support 'Forget Us Not', a joint initiative by Lien Foundation and Khoo Teck Puat Hospital. They have put together this guide in English and Mandarin to help persons with dementia live dignified lives. This is part of the plan to build Dementia-Friendly Communities in Singapore. The 'Forget Us Not' initiative will foster a kampong spirit where we come together to help one another. The information and tools in this guide is only a first step. If you would like to do…
  • The Tough and Tender Caregiver
    Many caregivers feel guilty and think it is wrong to get tough with their loved ones, even if the intention is to help in the long run. Maya Ramachandran delves into the dilemma with a personal account. As caregivers, we are concerned about the health of our loved one. We assist with the care of/take care of our loved one, in the midst of many other responsibilities that we are required to fulfil. Sometimes, the patient is uncooperative or simply stubborn to a point of no return. What do we do…
  • Music Therapy in Dementia: How Effective is it?
    A look at how music tends to make life so much better for those suffering from dementia “Music has power for individuals with all types of dementias and it can spark convincing outcomes at any stage of the disease when used appropriately. For example, the type/choice or duration of music at each stage of the disease has to be taken into account”, says Nilanjana Maulik, Secretary General of ARDSI (Alzheimer’s and Related Disorders Society of India), Kolkata. Most people enjoy music, but can it…
  • Building Community Bridges for Parkinson’s
    There is much more to life for people affected with Parkinson’s disease than treatments and medications, believes Sudha Meiyappan, founder of Parivarthan, a community support group in Chennai that provides a safe platform to those diagnosed with Parkinson’s disorder. Shaik Mohideen Sahib returned to India couple of years ago after he retired as a Hindi teacher for 20 years in Muscat, Oman.  This was not his best time since his mother had recently passed away, he was …
  • Using Mindfulness and Awareness as a Tool towards Wellbeing
    The unquiet mind Can you be with this one breath, This moment, this now?  —Paul Salmon Mindfulness is defined by Jon Kabat-Zinn, founder of the Stress Reduction Clinic at the University of Massachusetts, as “the awareness that emerges through paying attention on purpose, in the present moment, and non-judgmentally to the unfolding of experience moment by moment.”1 This rests on the simple idea that sorrow or distress is caused by not living in the moment, or feeling bad…
  • Try Tai Chi To Build Immunity And Reduce Stress
    Tai Chi, the ancient martial art from China, may be widely known as a self-defense art, but has abundant health benefits that can help cure ordinary ailments to life threatening diseases, says Tai Chi guru Carlton Hill.  What is Tai Chi? How is it different from other martial arts? Tai Chi Chuan or Taijiquan is a five thousand year old martial art practised in China. Though, in present times, it is mostly practised for its health benefits. Tai Chi Chuan is unique because one can…
  • To tell or not to tell - the caregiver's dilemma
    Breaking bad news to patients can be daunting and difficult, especially for caregivers.  Maya Ramachandran narrates her experience when she and her husband were caught in such a catch-22 situation.   My husband’s close relative was experiencing sudden onset of bleeding after almost 25 years post-menopause, at the age of 75! Fearing that it could be cancer, she had shied away from meeting doctors. After a whole year of having struggled with this almost alone, she …
  • A wish for no one to endure unnecessary pain
    Harmala Gupta traversed the journey from being a cancer survivor to founding CanSupport, a home based Palliative Care service in Delhi and NCR. CanSupport also runs out-patient clinics. Harmala Gupta shares her views with PatientsEngage on Palliative Care. PE: According to the ACHEON study ("The non-interventional, anonymous, non-biased ACHEON survey was the first and largest cross sectional evaluation of physicians’ and patients’ perspectives on cancer and non-cancer pain management…
  • I never wanted my mother to go into a dementia care home
    Carol D’Souza, a consulting psychologist, recounts her mother’s advancing dementia and how she and her family made peace with the agonizing decision to put her in a care home. Putting my mother in a Home was one of the most difficult decisions made by my family and me. Onset of dementia seemed so sudden for her; it started with bizarre behavior of her staying awake all night – worrying about all sorts of things she absolutely did not need to.  Her life had turned into a…
  • Multiple Sclerosis Society of India Chennai Chapter.
    The Multiple Sclerosis Society of India was established in 1985 at Mumbai. Mrs. Rehmat Fazelboy, a social worker and Mr.Tobaccowalla (Chairman, Voltas Ltd, Mumbai) are the founding members. Presently there are 9 chapters with 2 support groups.  The Chennai Chapter was inaugurated on September 1997. Our patron doctor is Prof.Dr.G.Arjundas. Mrs.Ann Gonsalvez is the Chairperson of the Chennai Chapter. We have about 210 patients on our rolls in Chennai.  Our Vision: Create awareness of…
I came upon this list of great advice from caregivers on what to do when you feel like you have reached your "breaking point" or a point of true exhaustion or frustration as a caregiver. What are some tips you would give others when they reach this…
Read the article here...http://www.thejournal.ie/help-the-aged-1814698-Dec2014/ Would something like this work in an Asian context ? I think its worth a few experiments for sure.      
I moved the Chennai 3.5 years ago to take care of my beloved grandma who developed breast cancer. Being a caregiver for her was a life changing experience for me. It showed me that even when we are caring for someone we love and even if we enjoy our…
We all experience many joys and many challenges as caregivers. Sometimes talking about the tough aspects of caregiving is a good way to make sure we are not keeping our frustrations and diffficulties bottled up. The more we internalize the stresses…
One of the most important things that Caregivers need to do for themselves and their loved ones is to take breaks. It is so vital to take time to focus on oneself, recharge, and get some rest. If a Caregiver does not take breaks, it can lead to…
How do you go about finding the right nurse for the patient or the elderly? What level of knowledge of English is important ? What are the top 3 things you look for ?    
Hello fellow Family Caregivers! It is exciting to have an online forum where Caregivers from India and around the world can come together to share and learn from each other. This is a space where you can pose questions, share your story, and just…
I came across http://www.oldisgoldstore.com/ recently. They have retail outlets in Chennai and ship to the southern states. Do you know of stores like these in other cities ?  We would like to add this information in our Resources centre  

Latest Communities

  • Neurological Conditions
    Parkinson's Disease, Multiple Sclerosis, Stroke Rehabilitation, Migraine Content for Dementia and…
  • Diabetes
    Pre-diabetes, Type 1, Type 2, Gestational, Complications, Diet and Nutrition, Yoga for Diabetes, Personal stories, News…
  • Caregiver Community
    A place where Caregivers come together to share common experiences, challenges,and resources.  Caregivers are…