Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

    Login To Join
    Add Discussion
  • FDA approval is great news for DMD community
    says RS Anand, parent of a child with Duchenne Muscular Dystrophy on the FDA approval of Emflaza (deflazacort). The U.S. Food and Drug Administration approved Emflaza (deflazacort) tablets and oral suspension to treat patients age 5 years and older with Duchenne muscular dystrophy (DMD), a rare genetic disorder that causes progressive muscle deterioration and weakness. Emflaza is a corticosteroid that works by decreasing inflammation and reducing the activity of the immune system.…
  • We need a Holistic Approach to Treating Cancer
    Susmita Mitra, Director - Special Projects at Cancer Patients Aid Association (CPAA), underlines the concerns and worries of cancer patients and emphasizes the importance of Psycho Oncology, a comparatively recent addition in cancer care, to build a positive frame of mind, ease trauma and facilitate recovery. It is well recognized that compared to any other disease, a diagnosis of cancer results in immense trauma to the patient on one hand, and his family members on the other, as they grapple…
  • Never Too Old to Sing
    The Choir of the Loaves and Fish, a musical ensemble of senior citizens, started by Pervin Varma with Regina Thomas in Bengaluru has been immensely therapeutic for the elderly and has helped bring loads of warmth and sunshine into their lives. Picture above: Ammachy taking a bow with Pervin Varma Imagine a group of people – all senior citizens between 65 and 96 – people who have suffered strokes or are living with cancer, arthritis, heart disease, dementia, physical disabilities, people with…
  • Mummy's Gift of Dying Well at 100
    With India’s ageing population increasing and the wish of most dying people to live their last few days happily at home, there is an urgent need to develop and expand palliative care in the country. Jo Chopra looks back on the fun her mother-in-law had at home before her final departure. A loved one dying at home is not a small thing. My own culture teaches us that people should die in hospitals (in a study some years ago in America, while 88% responding said they wanted to die at home, 56%…
  • Raising a Child with Autism to be Independent
    Parents of Vinamra, who has mild autism disorder, always made it a point to remember that their son can lead a happy, fulfilled life if they channelized his energies well. Mother Rima Ved recounts how she and her husband tirelessly prepared their son for adulthood and independence. My son, Vinamra, has autism. He is 21-year-old, all grown up, capable and independent today. But there was a time, nearly a decade ago, when I didn’t know how to raise him. I realized he was different from other kids…
  • Social Story Videos: Preparing Children with Autism for Outings
    Sometimes the routine activities like going to a restaurant or a dentist or a hair salon can seem daunting to a person with autism. Parents often do not know how to help their child navigate through these activities. Children with Autism are able to cope better with new and difficult social situations if they are prepared for it through video modelling. Social stories [TM] are a technique that was created by Carol Gray in 1991 to help teach social skills to people on the autism spectrum. They…
  • How to cope when your Spouse has Dementia
    Amrita Patil Pimpale, Dementia Care Consultant, lists out 5 things you can do to help your spouse/partner who has been recently diagnosed with dementia. Most people with dementia undergo behavioral changes during the course of the disease. They gradually lose their mental faculties and become confused and vulnerable. They tend to forget things that have happened quite recently, but may seem to have clear memory of things that happened a long time ago. They will experience mood changes, can…
  • Should Parents of Children with Autism Prepare a Will?
    Without a proper plan, your child with autism may face an uncertain future after you are gone. Chitra Iyer, Treasurer and Trustee, Forum for Autism, spells out reasons why it is absolutely necessary for parents to prepare a Will. While this may apply to various disabilities, the focus for this article is mainly on children with autism and keeps in mind the legal requirements in India. What if something were to happen to me tomorrow, how can I ensure that my child with Autism who is now an…
  • My Mother’s Hairdresser: Dementia friendly or not?
    A touching account of how a local hairdresser volunteered to help, when others refused, to give my mother, who lived with Young Onset Alzheimer's, a glam haircut and made her look uber cool in her final years.   They say it takes a village to raise a child. As caregivers, we realize that it takes an entire community to deal with Alzheimer’s. Extended family members, friends, neighbors, healthcare professionals, coworkers, employers, employees, service providers like household help,…
  • Promoting Accessibility through Inclusive Design
    The need to integrate inclusive design at our homes, schools, workplaces, malls, hospitals, parks, etc, especially to improve accessibility and mobility for the disabled, needs to be given urgent priority for the wellbeing of society, writes Daniel Wong, Access Consultant design professional. The world is experiencing a population boom never before seen in history. Birth rate is increasing while deathrate is slowing. People are living longer because of improved healthcare science particularly…
What to do when you've reached your breaking point as a caregiver
I came upon this list of great advice from caregivers on what to do when you feel like you have reached your "breaking point" or a point of true exhaustion or frustration as a caregiver. What are some tips you would give others when they reach this…
Dutch students choose to live in nursing homes rent-free (as long as they keep the residents company)
Read the article here...http://www.thejournal.ie/help-the-aged-1814698-Dec2014/ Would something like this work in an Asian context ? I think its worth a few experiments for sure.      
Share your caregiving story!
I moved the Chennai 3.5 years ago to take care of my beloved grandma who developed breast cancer. Being a caregiver for her was a life changing experience for me. It showed me that even when we are caring for someone we love and even if we enjoy our…
What is your biggest caregiving challenge?
We all experience many joys and many challenges as caregivers. Sometimes talking about the tough aspects of caregiving is a good way to make sure we are not keeping our frustrations and diffficulties bottled up. The more we internalize the stresses…
What do you do to take a break from Caregiving?
One of the most important things that Caregivers need to do for themselves and their loved ones is to take breaks. It is so vital to take time to focus on oneself, recharge, and get some rest. If a Caregiver does not take breaks, it can lead to…
Home nursing options
How do you go about finding the right nurse for the patient or the elderly? What level of knowledge of English is important ? What are the top 3 things you look for ?    
Welcome to the Caregiver Community!
Hello fellow Family Caregivers! It is exciting to have an online forum where Caregivers from India and around the world can come together to share and learn from each other. This is a space where you can pose questions, share your story, and just…
Stores dedicated for senior citizens in India and Singapore
I came across http://www.oldisgoldstore.com/ recently. They have retail outlets in Chennai and ship to the southern states. Do you know of stores like these in other cities ?  We would like to add this information in our Resources centre  

Latest Communities

  • Neurological Conditions
    2889 member(s)
    Parkinson's Disease, Multiple Sclerosis, Stroke Rehabilitation, Migraine Content for Dementia and…
    Login To Join
  • Diabetes
    21067 member(s)
    Pre-diabetes, Type 1, Type 2, Gestational, Complications, Diet and Nutrition, Yoga for Diabetes, Personal stories, News…
    Login To Join
  • Caregiver Community
    2310 member(s)
    A place where Caregivers come together to share common experiences, challenges,and resources.  Caregivers are…
    Login To Join