Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Payal in a brown dress holding her mother in a yellow kurta and white dupatta from behind
    पिताजी के स्ट्रोक के बाद पूरा परिवार मेरी माँ (प्राथमिक देखभालकर्ता) का समर्थन कर रहा है
    पायल के पिताजी को स्ट्रोक हुआ, और उस के बाद के वर्षों में पायल ने उनमें होने वाली शारीरिक और मानसिक गिरावट को करीब से देखा है। पायल और उनकी माँ पिताजी की दैनिक देखभाल में सक्रिय भूमिका निभाते हैं और देखभाल समय के साथ कठिन हो रही है। हमें अपने पिताजी की स्थिति के बारे में बताएं मेरे पिताजी को 15 साल पहले ब्रेन स्ट्रोक हुआ था और वे दिन-ब-दिन धीरे-धीरे बिगड़ते जा रहे हैं। उन्होंने अपनी अधिकांश याददाश्त खो दी है और अपने बच्चों के नाम तक याद करने के लिए संघर्ष करते हैं। अकेले रहने पर वे अकसर इधर-उधर…
  • How To Support Substance Use Recovery Of A Loved One
    While it is important to help out a close person trying to get out of substance use habits, it is also important to draw lines and explain what you will and will not accept. This is part of the series on substance use shared by the Addictions Research Group team at Sangath India. In this article, they focus on supporting substance use recovery of a loved one.   Part 1 of the series described about What is Substance Use Disorder Part 2 talked of How to overcome a…
  • उपशामक देखभाल के लिए अपने घर को कैसे तैयार करें
    गंभीर बीमारी से ग्रस्त व्यक्ति की देखभाल में कुछ विशिष्ट चुनौतियाँ होती हैं और व्यक्ति के जीवन की गुणवत्ता पर ध्यान देने के लिए प्रशामक देखभाल (पैलिएटिव केयर) का दृष्टिकोण अपनाना विशेष रूप से उपयोगी है। घर पर प्रशामक देखभाल कर पाने के लिए, व्यक्ति के आराम और शांति को सुनिश्चित करने के लिए, और देखभाल के दौरान आम होने वाली गलतियों  से बचने के लिए आपको अनुशासित ढंग से समस्या होने से पहले ही निवारक कदम लेने होंगे। इस लेख में क्रिटिकल केयर के क्षेत्र में कार्यरत एडवांस्ड नर्स प्रैक्टिश्नर उषा…
  • बेटे को खोने की पीड़ा मानो मेरा एक अंग बन गयी है
    अनल शाह का बेटा 15 साल का था  जब उसे अचानक बुखार हो गया और निदान और उपचार पाने के लिए 20 दिनों के संघर्ष के बावजूद, 27 जून 2017 को, मल्टी-ऑर्गन फेल्योर से उसकी मृत्यु हो गई। अनल शाह अभी भी इस शोक से जूझ रही है और उन्होंने यह दिल दहला देने वाला नोट बेटे की मृत्यु के बाद लिखा है। उन सभी लोगों के लिए जो लगातार जिद्द करते हैं कि मुझे अपने बच्चे की मृत्यु के शोक से निकल कर पुनः सामान्य जीवन जीना शुरू कर देना चाहिए! ऐसा लगता है कि मेरे चेहरे को देखने से आपको अपनी संभावित मृत्यु का ख़याल आ जाता है…
  • Lessons Of Empathy And Acceptance From A Caregiver For 50 Years
    Veena Sheel Bhatnagar, 80, a former lecturer of Economics, has been a non-stop caregiver for over five decades to her family members, the last being her late husband Vijay Sheel Bhatnagar who had Parkinson’s Disease. Here she recounts her long journey caregiver and shares many learnings. I became a caregiver soon after my marriage in 1963 at age 22. Since then it has it has been a nonstop 50+ year journey of caregiving. Till recently, I was a looking after my husband who had Parkinson’s Disease…
  • How Health Inequalities Impact Equality for Women
    This year on International Women's Day we focus on two aspects, the health related inequities that impact women both as patients and as caregivers. Reflect, share and let us know your thoughts. Did you know that there are many health related inequalities that impact women. There are a few that are captured in the infographic below. Let us recognise these and pledge to take steps to change this   On International Women's day, let us reflect on the biases we still need to break. The…
  • Mukta holding a bouquet of white flowers and a pink ribbon as a design element for breast cancer
    From Being A Caregiver To A Breast Cancer Patient
    Mukta Bhonsule, 55 was diagnosed with stage 3 breast cancer 9 years ago in Mumbai. She shares her journey with breast cancer, the survivorship issues she deals with and the challenges of balancing this as a caregiver of a COPD patient. I was diagnosed with Grade 3 Stage 2A Breast Cancer(HER 2+) in May 2013. What were your early symptoms. I was on a holiday in Goa and it was very hot there. When I got back, I had itching in my breast which I thought was due to heat and sweat. I spoke to my…
  • Image Description: An elderly person with a walker and supported by a caregiver
    बुजुर्गों में अकसर दिखने वाले ऐसे 12 लक्षण जो गंभीरता से लेने चाहियें
    वजन का बेवजह घटना, याददाश्त की समस्याएँ, कमजोरी और गहरी थकान जैसे लक्षणों को "सामान्य उम्र बढ़ने" की प्रक्रिया न समझें - ये किसी गंभीर समस्या का संकेत हो सकते हैं । इस लेख में डॉ शीतल रावल ऐसे 12  लक्षणों के बारे में बता रही हैं जो बुजुर्गों में अकसर पाए जाते हैं पर जिन्हें अनदेखा करने के बजाय आपको डॉक्टर की राय लेनी चाहिए।  वही लक्षण जो एक युवा व्यक्ति में एक कारण से हो सकते हैं वे बुजुर्गों में दूसरे कारणों से हो सकते हैं।  युवा व्यक्ति में शायद वे इतने गंभीर न हों, पर बुज़ुर्ग…
  • डिमेंशिया (मनोभ्रंश) वाले व्यक्तियों की देखभाल करने वालों को बेहतर देखभाल के लिए क्या समझना चाहिए
    डिमेंशिया (मनोभ्रंश) वाले व्यक्ति की देखभाल करना मुश्किल है। बदलती स्थिति के अनुसार आवश्यक बदलाव करते रहने के लिए देखभाल करने वालों को दृढ़ता से लगे रहना होता है और रचनात्मक भी होना होता है। इस लेख में स्वप्ना किशोर कुछ ऐसे महत्वपूर्ण पहलुओं पर चर्चा करती हैं जिन्हें देखभाल करने वालों को समझना और स्वीकार करना चाहिए। वे देखभाल को बेहतर संभालने के लिए कुछ सुझाव साझा करती हैं। अकसर यह माना जाता है कि परिवार वालों को डिमेंशिया के बारे में जानकारी दें तो वे डिमेंशिया वाले व्यक्ति को उचित सहायता दे…
  • Composite pic of Prima and her father with stage 4 cancer and the father in the garden on the phone
    My Father's Journey With Stage 4 Cancer
    Prima shares the challenges of caring for her father who was diagnosed with stage 4 cancer of the ureter and kidney, the effect that COVID had on the treatment choices, the pain he went through, the palliative care choices and the emotional turmoil of it all. I vividily remember that afternoon when he implored, “Take me to the doctor, I’m uncomfortable. I’m in pain and want to sleep”. My husband gave him his morphine pill and told him we would go see his doctor soon. He kept saying, he wanted…
What to do when you've reached your breaking point as a caregiver
I came upon this list of great advice from caregivers on what to do when you feel like you have reached your "breaking point" or a point of true exhaustion or frustration as a caregiver. What are some tips you would give others when they reach this…
Dutch students choose to live in nursing homes rent-free (as long as they keep the residents company)
Read the article here...http://www.thejournal.ie/help-the-aged-1814698-Dec2014/ Would something like this work in an Asian context ? I think its worth a few experiments for sure.      
Share your caregiving story!
I moved the Chennai 3.5 years ago to take care of my beloved grandma who developed breast cancer. Being a caregiver for her was a life changing experience for me. It showed me that even when we are caring for someone we love and even if we enjoy our…
What is your biggest caregiving challenge?
We all experience many joys and many challenges as caregivers. Sometimes talking about the tough aspects of caregiving is a good way to make sure we are not keeping our frustrations and diffficulties bottled up. The more we internalize the stresses…
What do you do to take a break from Caregiving?
One of the most important things that Caregivers need to do for themselves and their loved ones is to take breaks. It is so vital to take time to focus on oneself, recharge, and get some rest. If a Caregiver does not take breaks, it can lead to…
Home nursing options
How do you go about finding the right nurse for the patient or the elderly? What level of knowledge of English is important ? What are the top 3 things you look for ?    
Welcome to the Caregiver Community!
Hello fellow Family Caregivers! It is exciting to have an online forum where Caregivers from India and around the world can come together to share and learn from each other. This is a space where you can pose questions, share your story, and just…
Stores dedicated for senior citizens in India and Singapore
I came across http://www.oldisgoldstore.com/ recently. They have retail outlets in Chennai and ship to the southern states. Do you know of stores like these in other cities ?  We would like to add this information in our Resources centre  

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