Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

    Login To Join
    Add Discussion
  • Forget Us Not Handbook in English and Mandarin
    PatientsEngage is happy to support 'Forget Us Not', a joint initiative by Lien Foundation and Khoo Teck Puat Hospital. They have put together this guide in English and Mandarin to help persons with dementia live dignified lives. This is part of the plan to build Dementia-Friendly Communities in Singapore. The 'Forget Us Not' initiative will foster a kampong spirit where we come together to help one another. The information and tools in this guide is only a first step. If you would like to do…
  • The Tough and Tender Caregiver
    Many caregivers feel guilty and think it is wrong to get tough with their loved ones, even if the intention is to help in the long run. Maya Ramachandran delves into the dilemma with a personal account. As caregivers, we are concerned about the health of our loved one. We assist with the care of/take care of our loved one, in the midst of many other responsibilities that we are required to fulfil. Sometimes, the patient is uncooperative or simply stubborn to a point of no return. What do we do…
  • Music Therapy in Dementia: How Effective is it?
    A look at how music tends to make life so much better for those suffering from dementia “Music has power for individuals with all types of dementias and it can spark convincing outcomes at any stage of the disease when used appropriately. For example, the type/choice or duration of music at each stage of the disease has to be taken into account”, says Nilanjana Maulik, Secretary General of ARDSI (Alzheimer’s and Related Disorders Society of India), Kolkata. Most people enjoy music, but can it…
  • Building Community Bridges for Parkinson’s
    There is much more to life for people affected with Parkinson’s disease than treatments and medications, believes Sudha Meiyappan, founder of Parivarthan, a community support group in Chennai that provides a safe platform to those diagnosed with Parkinson’s disorder. Shaik Mohideen Sahib returned to India couple of years ago after he retired as a Hindi teacher for 20 years in Muscat, Oman.  This was not his best time since his mother had recently passed away, he was …
  • Using Mindfulness and Awareness as a Tool towards Wellbeing
    The unquiet mind Can you be with this one breath, This moment, this now?  —Paul Salmon Mindfulness is defined by Jon Kabat-Zinn, founder of the Stress Reduction Clinic at the University of Massachusetts, as “the awareness that emerges through paying attention on purpose, in the present moment, and non-judgmentally to the unfolding of experience moment by moment.”1 This rests on the simple idea that sorrow or distress is caused by not living in the moment, or feeling bad…
  • Try Tai Chi To Build Immunity And Reduce Stress
    Tai Chi, the ancient martial art from China, may be widely known as a self-defense art, but has abundant health benefits that can help cure ordinary ailments to life threatening diseases, says Tai Chi guru Carlton Hill.  What is Tai Chi? How is it different from other martial arts? Tai Chi Chuan or Taijiquan is a five thousand year old martial art practised in China. Though, in present times, it is mostly practised for its health benefits. Tai Chi Chuan is unique because one can…
  • To tell or not to tell - the caregiver's dilemma
    Breaking bad news to patients can be daunting and difficult, especially for caregivers.  Maya Ramachandran narrates her experience when she and her husband were caught in such a catch-22 situation.   My husband’s close relative was experiencing sudden onset of bleeding after almost 25 years post-menopause, at the age of 75! Fearing that it could be cancer, she had shied away from meeting doctors. After a whole year of having struggled with this almost alone, she …
  • A wish for no one to endure unnecessary pain
    Harmala Gupta traversed the journey from being a cancer survivor to founding CanSupport, a home based Palliative Care service in Delhi and NCR. CanSupport also runs out-patient clinics. Harmala Gupta shares her views with PatientsEngage on Palliative Care. PE: According to the ACHEON study ("The non-interventional, anonymous, non-biased ACHEON survey was the first and largest cross sectional evaluation of physicians’ and patients’ perspectives on cancer and non-cancer pain management…
  • I never wanted my mother to go into a dementia care home
    Carol D’Souza, a consulting psychologist, recounts her mother’s advancing dementia and how she and her family made peace with the agonizing decision to put her in a care home. Putting my mother in a Home was one of the most difficult decisions made by my family and me. Onset of dementia seemed so sudden for her; it started with bizarre behavior of her staying awake all night – worrying about all sorts of things she absolutely did not need to.  Her life had turned into a…
  • Multiple Sclerosis Society of India Chennai Chapter.
    The Multiple Sclerosis Society of India was established in 1985 at Mumbai. Mrs. Rehmat Fazelboy, a social worker and Mr.Tobaccowalla (Chairman, Voltas Ltd, Mumbai) are the founding members. Presently there are 9 chapters with 2 support groups.  The Chennai Chapter was inaugurated on September 1997. Our patron doctor is Prof.Dr.G.Arjundas. Mrs.Ann Gonsalvez is the Chairperson of the Chennai Chapter. We have about 210 patients on our rolls in Chennai.  Our Vision: Create awareness of…
New Discussion for Caregiver comm
New Discussion for Caregiver comm some description
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
hello
hello friends
AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
no details

Latest Communities

  • Neurological Conditions
    2889 member(s)
    Parkinson's Disease, Multiple Sclerosis, Stroke Rehabilitation, Migraine Content for Dementia and…
    Login To Join
  • Diabetes
    21067 member(s)
    Pre-diabetes, Type 1, Type 2, Gestational, Complications, Diet and Nutrition, Yoga for Diabetes, Personal stories, News…
    Login To Join
  • Caregiver Community
    2310 member(s)
    A place where Caregivers come together to share common experiences, challenges,and resources.  Caregivers are…
    Login To Join