Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • The case for Palliative Care
    An awareness film made by Indian Association of Palliative Care based on excerpts from over 200 interviews conducted with working and retired nurses across India  
  • Managing Depression and Anxiety with Parkinson's Disease
    People with Parkinson’s may experience extreme sadness of mood and anxiety. This could be due to the Parkinson’s itself or due to the effects of the medication. It is important to acknowledge these emotions and to get the required help. Depression It is natural for everybody to feel sad at times, or to get upset by things. However, after a while or if they are put in another situation, then they may no longer experience these emotions. Sometimes, people tend to experiences these emotions for an…
  • Palliative care in Kerala - lessons and answers
    With a palliative care policy formulated in 2008, Kerala has become a path-breaker and a model for the rest of the country. Professor Devi Vijay of IIM Calcutta provides some insights into this community-based aspect of health care.  1. What can the rest of the country learn from the success of the Kerala palliative care story?How can other countries and communities leverage this community-based model?  There are several elements of the Kerala palliative care movement worth examining…
  • It is important to talk to people with dementia
    Talk to your loved one with dementia; talk to others in your shoes, says Melissa Chan, founder of Project We Forgot, which supports caregivers of patients with Alzheimer’s and dementia. Please share your encounter with Alzheimer’s Disease.  I was about 14 when my dad was diagnosed at age 53. Initially, we were confused because his family had no history of the disease but later the doctors pinned it down to the late-onset of effects caused by a car accident he had…
  • Dementia caregiving challenges and solutions
    Families often find themselves at wit’s end looking after a loved one with dementia. Porrselvi A.P., a cognitive and psychosocial interventions specialist, offers a case study that shows that caregiving challenges can be overcome with the right strategies.  We received a call from a very disturbed Mr. K, who was trying to find a dementia care home for his aged father, Mr. S., aged 73. Mr. K was distressed because he had never thought there would come a day when he would have to seek…
  • Care for the Caregiver
    Maya Ramachandran shares her experience as a caregiver to her parents and the learnings she drew from this. Caregiving is soul-satisfying, meaningful, draining and frustrating all at the same time. I had been a caregiver for my father for almost 16 years. My mother took charge from the forefront and I was with her, supporting her to the best of my ability through this period. However, for the last two years of my father’s life, I took on the role of ‘primary caregiver’, as my mother…
  • Image description: Black and white image shows an elderly persons hands on a lap
    Coping with Disasters and Dementia
    Disasters such as floods have an even worse impact on people with dementia. Dr Sridhar Vaitheswaran explains what precautions and coping measures can be taken A disaster is defined as an unexpected event that kills a lot of people or causes a lot of damage (Oxford Advanced Learner’s Dictionary). During a disaster, routine life is affected to a significant extent. Individual lives are under threat and the immediate focus is on protecting lives. The capacity of organisations that generally manage…
  • Hallucination and Delusion in Parkinson's Disease
    Hallucination and Delusion in Parkinson's Hallucinations and Delusions are two types of Neuropsychiatric symptoms which affect people with Parkinson’s, and result in disturbance of perception and thought. They can occur due to two reasons - as a symptom of the condition or as a side effect of the medication. A Hallucination involves a sensation (seeing, hearing, smelling, tasting or feeling) about something that does not exist. It is experienced when the person is in a wakeful state and very…
  • A person in a blue full sleeved shirt holding his head indicating a brain stroke
    Post-Stroke Depression Is Common
    But often overlooked, says Porrselvi A.P. a cognitive and psychosocial interventions specialist. Here, she offers a case study and practical strategies to guide you back to normal life.   The patient: Mrs. K, a 67-year-old woman had a stroke in the left side of her brain in September last year.  Her condition: Mrs K was referred for cognitive and psychological evaluation following complaints of social withdrawal, memory disturbances and increased irritability…
  • When therapy harms instead of healing
    In India, child therapy takes place behind closed doors without any parental supervision or social regulation. Are we wating for something untoward to happen to these vulnerable kids, asks outraged mother Preetha Anoop and psychologist and special educator Seema Lal.  A mother Preetha Anoop shares March 23, 2015 - a day I cannot forget! After being up all night attending to my two-year-old who was down with a bad cold, I took my little one to the hospital. My…
What to do when you've reached your breaking point as a caregiver
I came upon this list of great advice from caregivers on what to do when you feel like you have reached your "breaking point" or a point of true exhaustion or frustration as a caregiver. What are some tips you would give others when they reach this…
Dutch students choose to live in nursing homes rent-free (as long as they keep the residents company)
Read the article here...http://www.thejournal.ie/help-the-aged-1814698-Dec2014/ Would something like this work in an Asian context ? I think its worth a few experiments for sure.      
Share your caregiving story!
I moved the Chennai 3.5 years ago to take care of my beloved grandma who developed breast cancer. Being a caregiver for her was a life changing experience for me. It showed me that even when we are caring for someone we love and even if we enjoy our…
What is your biggest caregiving challenge?
We all experience many joys and many challenges as caregivers. Sometimes talking about the tough aspects of caregiving is a good way to make sure we are not keeping our frustrations and diffficulties bottled up. The more we internalize the stresses…
What do you do to take a break from Caregiving?
One of the most important things that Caregivers need to do for themselves and their loved ones is to take breaks. It is so vital to take time to focus on oneself, recharge, and get some rest. If a Caregiver does not take breaks, it can lead to…
Home nursing options
How do you go about finding the right nurse for the patient or the elderly? What level of knowledge of English is important ? What are the top 3 things you look for ?    
Welcome to the Caregiver Community!
Hello fellow Family Caregivers! It is exciting to have an online forum where Caregivers from India and around the world can come together to share and learn from each other. This is a space where you can pose questions, share your story, and just…
Stores dedicated for senior citizens in India and Singapore
I came across http://www.oldisgoldstore.com/ recently. They have retail outlets in Chennai and ship to the southern states. Do you know of stores like these in other cities ?  We would like to add this information in our Resources centre  

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