Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Stock pic of a person with mouth ulcer and a green band with white font and text that says Get Rid Of Mouth Ulcers
    How To Get Rid Of Mouth Ulcers?
    Oral health is not limited to your teeth alone. Mouth ulcers or sores can develop inside the mouth, cheeks, lips and tongue that can be extremely painful. Dr Shail Jaggi informs us on causes and symptoms of mouth ulcers and offers some advice on how to keep our mouth healthy, hygienic and problem free. All of us have at some point experienced oral sores in the mouth. These are generally very unpleasant and extremely painful and will persist for a couple of days. These sores are called ulcers.…
  • 10 Tips for Better Sleep
    Millions of people round the world are chronic users of sleeping pills or other intoxicants to rest each night increasing the risk of death and poor health. Dr A Banerjee, Director Sleep Medicine and Research Center at MGM Institute of Health Sciences emphasizes the importance of good sleep to regenerate the body’s mechanisms and ward off diseases like diabetes, hypertension and bipolar disorder. #WorldSleepDay Sleep is essential for a healthy life. Every person requires the right amount…
  • Stanford Medicine: Arts and Humanities in Medicine
    The world of medicine is beginning to increasingly acknowledge the potential of expressive arts therapies such as art, music, drama, dance/movement, poetry/creative writing and play in the context of healing, treatment, psychotherapy, counselling and rehabilitation. Activities such as drawing, drumming, creative movement and play acting allow individuals of all ages to express deep-seated thoughts and feelings, improve physical, mental and emotional well-being and boost self-esteem and…
  • Catch our FB live Q&A event on the Diabetic Diet
    Don't miss our FB live event with dietitian and Diabetes Educator Ujjwala Baxi on Thursday 02nd March 2017 4pm IST, 6.30pm SGT. Get your questions and join the FB live event tomorrow
  • My Son's Rare Disease Has Made Us Stronger Humans
    Rare Disease Day 2017 RS Anand has a teenage son with a rare disease Duchenne Muscular Dystrophy which restricts him to a wheelchair. He talks about the emotional and mental strength that they have needed to build on as family to accept and overcome the various challenges. Please tell us a bit about your son's condition  My son Karanveer has Duchenne Muscular Dystrophy (DMD). The Muscular Dystrophies are a group of genetic diseases characterised by progressive weakness and degeneration of…
  • Inclusive Playgrounds Help Reduce Stigma and Inhibitions
    The concept of inclusive and accessible outdoor play areas for differently abled is being actively recognised and built across several cities in India. Manju George, Senior Program Officer, ESAF Bangalore, talks about the challenges involved in undertaking these initiatives. Why did you embark on this initiative of an inclusive play area? In 2008, a research done across three cities with children and different stakeholders highlighted the issue of lack of play spaces for kids. Hardly anyone…
  • Anxiety, Stress and the Special Needs Parent
    The parents and families of children with special needs go through a lot of stress and anxiety in bringing up their children. Dr Roma Kumar, a Senior Consultant in Clinical Psychology, discusses various issues that these parents have to tackle on an almost everyday basis and possible solutions. Q1. Different research and surveys across the world show that more than 50% of the parents of children with disabilities suffer from anxiety, stress and depression. In your experience in India what are…
  • Caregiver Self-care is not Selfish
    Adveka Foundation, one of the first organizations in India to work primarily with caregivers, hands out tips on self-care and emotional management and how to prevent stress and burnout. The growing burden of chronic diseases and health care has given rise to a new community that is rapidly gaining in number and significance: The Caregivers. Caregivers provide support and assistance to individuals suffering from a health issue and those unable to look after themselves. They could either be…
  • Simple Tips for Caregivers of Persons with Dementia!
    Tips for Caregivers Dementia is a general term for decline in a person's mental ability that is severe enough to interfere with his/her daily life. It may involvememory loss, difficulties with thinking, problem-solving or language. Dementia is progressive, which means the symptoms will gradually get worse. Even though most cases of dementia come from irreversible causes, there is still much that families can do to help their loved ones continue to function as well as possible for as…
  • Help children with cancer develop skills to cope with stress and anxiety
    On International Childhood Cancer Day, Poonam Bagai, Founder Chairman of Cankids...Kidscan, a family support group for children suffering from cancer and their families, talks at length about how hard it is to tackle the medical and emotional wellbeing of a child who learns to grapple with reality through various stages of his treatment.  1. What are the objectives of Cankids? CanKids...KidsCan is a National Society for Change for Childhood Cancer in India & YANA (You are not Alone) -…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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