Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Red butterfly with spots in an open field. Image from Pixabay
    The Best Motivational Posters of 2017
    Here is our compilation of the posters that motivated and inspired our readers and social media followers. Which one do you like most?  
  • When You Accompany Someone to the Hospital
    Waiting for medical test results can be the hardest part, but you can make it easier. In a heart-warming article, Usha Jesudasan, relates how she became a nervous wreck when her mother was diagnosed with breast cancer, and how the composed, comforting presence of her son gave her strength to face her diagnosis.    At some point, most of us will accompany someone we love to a hospital or a doctor.   We  go, because we care about the person who felt the lump in her breast…
  • Image of a jar of water with cucumber and mint. Risk of Dehydration in Winter
    Are You Drinking Enough Water in Winter?
    People often fail to recognize the significant dangers of dehydration in winter, dismissing it as a health concern of hot, summer months. Dr Shital Raval corrects this common misconception and advocates why water is crucial even during the cold weather to stay energized. Dehydration is a hidden threat in the months of winter when many people forget to drink as much water as they do in hot summer months. This is a common psychological mistake as we easily forget about hydration in the cold…
  • How can I Help Someone Coping with Grief and Bereavement?
    Ever struggled to figure out what you can do or say to someone grieving the loss of a dear family member or friend. Here is a useful guide on how you can help someone coping with grief and bereavment. If you have other suggestions or experiences please do share by leaving a comment below  
  • A Blessing to have the Strength to face Caregiving Challenges
    Mala Sen had caregiving thrust upon her when her nonagenarian mother-in-law with full blown Alzheimer’s appeared in her life. She faced the challenges head on and says that she has emerged a stronger person in the process. A personal account: A caregiver, all of a sudden I became a care giver by default.... My husband's mother was developing Alzheimer’s which none of her 3 children were aware of .. A simple reason ..We have an insensitive approach to aging! When she would repeat anything…
  • Exercise to Control Lymphoedema is Like Brushing Teeth
    Jayshree Guru was diagnosed with breast cancer, but she decided to be strong to face the treatment, for her own sake as well as for her family. Having dealt with cancer, she was not prepared when Lymphoedema set in. With help and assistance from Lakshmi Pain and Palliative Care, Jayshree learnt to treat lymphoedema.  I was diagnosed with breast cancer at 48yrs.  It was tough, and I did not think much about it at that time. One thing I decided - that I will not become weak and feel…
  • Prevention and Treatment of Lymphoedema
    Lymphoedema can be caused by cancer, surgery of any kind, radiotherapy or even infection and can result in swelling, pain and discomfort. Dr. Subathra Muthukumaran of Lakshmi Pain and Palliative Care Trust shares how it can be managed by simple exercises and what to avoid in such a situation. The goal of palliative care is to relieve symptoms and improve quality of life of those with chronic illnesses since people go through not just pain but various other symptoms. One such distressing symptom…
  • ‘Decisions must be in the Best Interest of the Patient’
    Dr. M.R Rajagopal, Chairman, Pallium India, delves into the ethical dilemmas surrounding end-of-life decisions, the fundamental right to live with dignity and quality of life. Palliative care should be made available to every person who needs it. An interview with PatientsEngage. PE: The role of medicine is extension of life. So shouldn't all efforts be made to extend life of a patient under any and every circumstance? The primary function of a medical system is to help a person stay healthy…
  • Living with Cerebral Palsy: It's Only An Impairment
    Sameer Chaturvedi, a post graduate in Sociology from the Delhi School of Economics and currently a PhD researcher, lives with Cerebral Palsy but that has not stopped him from feeling as much a part of society as anyone else. Here’s why: I am Sameer Chaturvedi, living with an impairment. Yes, living with cerebral palsy but not suffering from it. I feel the biggest barrier persons with impairment face in their lives is attitudinal. We are living in a society which is dominated by persons without…
  • Antibiotic Resistance, a threat to Healthcare
    Antibiotic resistance or Antimicrobial resistance(AMR) is emerging as a major threat the world over. With high prevalence of infectious disease and poor health care, India is the largest consumer of antibiotics. Dr. Camilla Rodrigues, Consultant Microbiologist & Chairperson Infection Control Committee, P.D. Hinduja Hospital, Mumbai, gives us an overview of antibiotic resistance. Antibiotic resistance, a global concern, is particularly pressing in developing nations, including India, where…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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