Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

    Login To Join
    Add Discussion
  • Losing A Loved One – Dealing With Death And Loss
    Losing a loved one especially after a long period of caregiving can be distressing and leave you with a range of different and conflicting emotions. This article by PDMDS suggests six ways to deal with grief and loss.   Losing someone close to you is extremely distressing. That loss also signifies the end of your caregiver role which may create feelings of emptiness. How you cope with the demise of the person you cared for is a very personal thing. Remember, there is no right or wrong…
  • Fall Proofing the Home for Older Adults
    Falls are probably the number one cause of injuries in seniors resulting in high medical and rehabilitative costs. Porrselvi A.P. a cognitive and psychosocial interventions specialist, offers valuable tips and suggestions for preventing falls at home, from installing handrails and anti-skid mats to decluttering the house and wearing sturdy footwear. Falls can lead to avoidable hospital admissions and the associated complications for elderly with a good health status as well as those older…
  • Assistance Dogs Help People See Past The Disability
    Says Shirin Merchant, India’s pioneering canine behaviourist and trainer, while talking about assistance dogs, a relatively new concept in India, where dogs are specially trained to perform a range of tasks to assist individuals with disability. How and when did you become a canine behaviourist and trainer? My journey as a dog trainer and behaviourist started in 1995. What is an assistance dog and what is it trained to do? It is very difficult for an able-bodied person to imagine the…
  • My Father - My Best Friend, Philosopher and Guide
    A freak accident turned a bright, bubbling Preethi Srinivasan into a quadriplegic overnight. Her struggle has also been her parents’ struggle, and the positivity she received from them keeps her going. This is her touching tribute to her late father who is still her source of strength and courage.     I'm an only child. I was born nine years after my parents were married, and that too after a great deal of prayer and penance. My father had a very macho, tough-man image, but it was, in…
  • 18 Practical Tips on Safe Hygienic Practices for Cancer Patients at Home
    Cancer patients are prone to infections and the home environment must be kept clean. Precautions to follow if they are on chemotherapy or radiotherapy treatment. Dr. Shital Raval shares practical tips for cancer patients and their caregivers to follow with cancer at home.  SELF: Keep a pair of gloves handy at home and wear them to clean any spills, cleansing surfaces or disposing trash. Remember to wash hands with soap before and after wearing gloves! Use antibacterial or bleaching…
  • Never let the patient know how you feel
    Rajalakshmi Siva, caregiver of a person with cancer and co-author of 'When Thoughts Invade the Cancer Conqueror’, recounts her days of a caregiver and how she coped with it right through the ordeal. What started the journey to hell and back was a pool of blood with a few drops of urine trailing him all the way up the driveway, to the parking lot, into the lift, and into the house and thence to the washroom. It was reminiscent of a silent scream that seemed to reverberate: Hell is empty and all…
  • Coping with Difficult Dementia Behaviours
    The most effective way to manage difficult behaviours in dementia and keep stress at bay for family, friends and caregivers is acceptance, patience and calmness, recommends Porrselvi A.P. a cognitive and psychosocial interventions specialist. Many people with dementia undergo changes in behaviour during the course of the disease. These changes are unexpected, awkward, difficult to understand and are termed problem or deviant behaviour.  These sudden behavioural changes can be challenging…
  • Healthy ways to gain weight
    Believe it or not people who are thin and underweight are not always healthy and free of illness. They can struggle to put on weight. Our nutritionist Kohila Govindaraju shares tips on healthy meal plan to gain weight. This is also important as people age and lose weight. Being lean sounds great, but being underweight because of poor nutrition doesn't sound healthy at all. Being underweight, you are more likely to pick up infections, a lack of vitamins and minerals will hinder your growth if…
  • Dementia Friendly Communities are essential to offer societal support to those affected
    Dr Sudhir Kumar, a consultant with specialisation in old age psychiatry and neuropsychiatric disorders discusses his views on the importance of Dementia Friendly Communities (DFCs) and how India needs to work more towards it Dementia-friendly communities help people with dementia feel included and supported in the day to day surrounding – the places they work, live and play  A dementia-friendly community focuses on spreading awareness about dementia and providing a safe and supportive…
  • Review of Current Principles for Quality of Life for people with Multiple Sclerosis
    Multiple Sclerosis International Federation, (MSIF) London is reviewing the current principles, which determine the “Quality of Life” of persons who have MS. As part of the said consultative committee, a feedback as regards the same is being sought from MS persons around the World. MSSI is looking to consolidate the feedback. Join our discussion here.   The Current Principles   1. Independence and Empowerment People with MS are empowered as full participants in their communities and…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

Latest Communities

  • Neurological Conditions
    2889 member(s)
    Parkinson's Disease, Multiple Sclerosis, Stroke Rehabilitation, Migraine Content for Dementia and…
    Login To Join
  • Diabetes
    21067 member(s)
    Pre-diabetes, Type 1, Type 2, Gestational, Complications, Diet and Nutrition, Yoga for Diabetes, Personal stories, News…
    Login To Join
  • Caregiver Community
    2310 member(s)
    A place where Caregivers come together to share common experiences, challenges,and resources.  Caregivers are…
    Login To Join