Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • When I am at work I am "resting"
    Joan's wish is straightforward: "My ultimate wish for Nat is for her to happy and independent, where she doesn’t need financial aid from me or my husband, is able to stand on her own and isn’t a liability to anyone else." Joan, in conversation with SPD Singapore, answers 10 questions on bringing up Natania, who has autism spectrum disorder and shares with us her biggest hurdle to date and what keeps her going. Q1: You are Natania’s biggest supporter. How did you face her condition early on? I…
  • Tips for Taking Medication Safely
    There is a reasonably high percentage of avoidable deaths which occur yearly due to medication errors. It is important to ensure that administration of medicines is made as safe as possible to reduce lapses in proper health care, life threatening complications, and death. Here are a set of handy guidelines and best practices for safe medication management. Guidelines on medication use: SAFE ADMINISTRATION OF MEDICINES Be informed about the medications you are on and their names, dosages,…
  • 5 Challenges of Dementia Care in Gujarat
    Dementia is difficult. Absence of diagnosis, counselling and support makes matters worse. Basic awareness and services can help decrease caregiver stress. Daksha Bhat of Varishta analyses the situation on dementia care in Gujarat. Dementia may start as a slow, creeping change that gradually makes its inroads into our lives. It can happen to anybody who is over 60. Beginning with a gradual decline in the capacity to recall important things, it gradually manifests as a slow deterioration in the…
  • Colours of Life
    For parents. Vedika Aum pens a beautful poem that captures how we all see and feel for our parents now. The love and care we received from them all our lives, now we return with deep reverence. Bringing life to a full circle and growing up each moment as we become their parents. How a single day brings many colours. Yesterday was one such day for me. The bright sunny morning merging with the rainbow hues with like minded people   The aquamarine evening so relaxed and blissful , signalling…
  • The medical system failed us
    Usha Ravi touches upon the lack of adequate Palliative Care facilities in our country and how important it is to provide comfort to the patient along with proper treatment. Working with terminally ill patients and their families for over 20 years has helped me value life and accept life’s realities. As a critical care nurse in Melbourne, Australia, I have witnessed and continue to witness the physical and mental stress that the patient and family go through. It is sincerely fulfilling to see…
  • Journey from Negative to Positive through Dance Movement Therapy
    Restoring self-esteem and self-worth is what Dance Movement Therapy by Renelle Snelleksz has successfully achieved for a cross section of people like people with Parkinson’s Disease or those with a history of physical abuse and even children who have survived cancer but are deeply scarred. What is Dance Movement Therapy? How is it different from learning Dance? Dance Movement Therapy (DMT) is very different from technique-based dance in that it creates a safe and non-judgemental space for…
  • Caregiver's Guide to Mental Illness support
    ‘Mental Illness and Caregiving: Challenges, Concerns and Complications’ – authored by Schizophrenia Awareness Association’s president Mr Amrit Bakhshy, was launched to coincide with World Mental Health Day. This comprehensive book, the first of its kind in India, is written mainly for caregivers of persons with mental illness and provides valuable information. Here is an interview with the author and an extract from the book. What was the inspiration for your book? How was the idea born? I…
  • Mom is not suffering anymore
    A father-daughter duo recalls their personal trauma over the tragedy of losing their closest person to terminal cancer and struggling to help her cope with the pain. A case for respecting end of life choices of a patient and access to Palliative Care.  THE HUSBAND SPEAKS... Jayanta Sinha She is my wife, my child’s mother – the most beloved one – who passed away at the age of 49 years after a painful journey of seven long months. Smriti Kana was always a good student and aspired to be a…
  • The Promise
    Madam Soh Chin Hong, 47, fought the good fight against cancer with her husband by her side, until the end. HCA Hospice Care, Singapore shares this heartbreakingly beautiful story of a loving couple. “She was very loving, a very righteous and passionate person”, said her husband and caregiver, Mr Eric Yeo, 47. The loving couple, who have been married for 20 years, first met while they were studying in NAFA School of the Arts. Eric reminisces fondly, “She didn’t like me at the beginning…
  • Coming Full Circle
    Like any young woman, Choo Peck See, 45, had dreamed of meeting the right person someday, settling down and starting a family of her own.  It was a dream come true when she was called up to receive a kidney transplant and have a shot at a normal life. But life had other plans. Read on: Bittersweet Sixteen Mere months after completing her O-Levels and still finding her bearings in the aftermath of her mother's sudden stroke, Peck See herself showed symptoms of kidney failure. The poor…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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