Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • FDA Clears Mobile App to Treat Alcohol, Marijuana, Cocaine Addiction
    In a milestone, the Food and Drug Administration (FDA) approved the first-ever mobile medical app to help treat people with substance use disorders (SUDs). The Reset device is designed by Pear Therapeutics and is now cleared in the US to assist in outpatient therapy for alcohol, cocaine, marijuana, and stimulant addiction—although it is notably not permitted for treating opioid dependence. So just how does an app assist in addiction therapy? The Reset device is a mobile medical application…
  • Carriers of Optimism for the Deaf
    Mirakle Couriers is a National Award winning courier agency that employs low-income deaf adults. We speak to the founder Dhruv Lakra about his pioneering social-commercial enterprise. Your enterprise, Mirakle Couriers, is business with a social purpose of providing employment to deaf individuals. What led you to you start this venture? Mirakle Couriers was triggered by one particular incident I experienced while traveling on a bus in Mumbai. I was sitting next to a passenger who was anxiously…
  • The Importance of Early Diagnosis in Dementia
    Saadiya Hurzuk is a Centre Manager and Clinical Psychologist at ARDSI Hyderabad. She shares her views on why it is important to have an early diagnosis in dementia treatment. Over a period of time dementia has become one of the frightening epidemics in the global health scenario. With social stigma attached to the disorder, it is kept hidden. People find it difficult to accept and understand the problems they are facing with memory and cognition that is affecting them daily. Most of the time…
  • Will I become like my mother?
    Vimal Balachander talks about the difficult days of caring for her mother-in-law during the latter’s steady decline with Alzheimer’s Disease. ‘Will I become like my mother?’ my mother-in-law asked me five years ago, in a shaking voice, ‘I don’t want that, I know what that is, sitting in a corner quietly’. This was in 2012. My mother-in-law, then 74, hither-to-independent business woman, had recently moved into our apartment, just fifty feet away from her beautiful seaside house. Savithri…
  • Importance of Emotional Memory and Associations in Dementia
    Neha Sinha, a clinical psychologist by profession talks about how emotional connect is very important for people with dementia. Even if they have loss of actual memory, they remain receptive to emotions as well as to the body language of people around them. Each individual is unique and so are his or her experiences, memories and feelings. There is a general apathy towards dementia especially when it comes to remembering the person they are, the rich history they hold. People with dementia…
  • Holistic Self-Care for Lasting Happiness and Optimal Well-being
    There are no short cuts to optimal well-being. Holistic Self-Care requires that we focus on all five aspects of our life.    To achieve lasting happiness and optimal well-being – towards personal fulfillment, transformation and self-realiszation, one needs to devote time on a regular basis (preferably daily) to engage in the renewal of all aspects of our lives – physical, intellectual, emotional, social and spiritual. It means taking care of ourselves, holistically…
  • Are We as a Community Failing Special Needs Families?
    The recent incident of a mother in Bengaluru causing the death of her disabled child has stirred many reactions and caused a lot of introspection in families with disabled children. But what of the larger community? Did we give it a moment? What can we do? What should we do? During a conversation in a little cafe in Chennai with some of the early contributors of PatientsEngage, people associated with VidyaSagar, an organisation for children and adults with special needs, the commonly held…
  • I am Bipolar. Will You Marry Me?
    Dr Avinash Joshi, a psychiatrist, has set up a marriage bureau for people with psychiatric and physical disabilities in the hope of providing them not just a soul mate, but also helping build a relationship on trust . You have started a marriage bureau for people with psychiatric and physical disabilities, the first of its kind in India. What spurred you to set up this unique initiative? I have set up a matchmaking site called, manomarriage.com for people with psychiatric and physical…
  • Late-stage Dementia Home Care: Challenges and Practical Suggestions for Families
    Swapna Kishore sheds light on the rarely talked about challenges of home care for late stage dementia, especially due to low and infrequent communication and multiple medical problems.  She brings together her interviews with Dr. Soumya Hegde, a Bangalore-based Consultant Geriatric Psychiatrist who provides practical solutions. Most discussions around dementia are about memory problems, confusion, wandering, withdrawal, aggression, etc. We rarely talk about later stages, when the loved one…
  • A Friendship Haven for Parents and their Children with Special Needs
    Mitr is a vibrant community centre in Chennai for parents who have children with special needs, where you can bond with like-minded families, sit back and relax at the Special Needs Mitr Cafe, or engage in an exciting range of vocational classes and activities held for both parents and kids. Parents of children with special needs may feel isolated and disheartened coping with medical, financial, educational and emotional issues. Mitr is a centre in Chennai for serving parents of children who…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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