The Parkinson’s Disease & Movement Disorder (PDMDS) community is a congregation of people from far and wide who come together for a common cause close to our heart- Parkinson's Disease. Whether you are someone living with and fighting powerfully against the condition, or someone dedicating their life toward the care of a loved one with Parkinson's, or just someone who wants to learn more about Parkinson’s- you can become a part of our community. . . Because everything we do expresses our motto "Together we move better" To find out more about the support we can provide to people with Parkinson’s please visit: www.parkinsonssocietyindia.com
Sometimes the Daily activties like Bathing, Dressing and Eating can be a huge challenge for caregivers looking after a person with dementia. Here are a few useful tips. Let us know which one you find helpful. Tips for Bathing For some people bath time can be a frightening, confusing experience. Plan the bath or shower for the time of day when the person is most calm and agreeable. Be consistent. Try to develop a routine. Tell the person what you are going to do, step by step, and allow…
Communicating with a person with dementia can be quite a challenge. There are some tips that can definitely help get the attention of the person and not agitate them. Here are some Dos and Don'ts. DO's DON'Ts Approach from the front, make eye contact and introduce yourself if necessary Don’t wave hand while talking as person’s attention could be distracted Speak slowly, calmly and use a friendly facial expression Don’t talk too fast or shout. Shouting out could have negative effect…
Tips for Caregivers Dementia is a general term for decline in a person's mental ability that is severe enough to interfere with his/her daily life. It may involvememory loss, difficulties with thinking, problem-solving or language. Dementia is progressive, which means the symptoms will gradually get worse. Even though most cases of dementia come from irreversible causes, there is still much that families can do to help their loved ones continue to function as well as possible for as…
Vonita Singh from Dubai is a trained Kathak dancer who, through her unique initiative Movement Mantra, addresses the basic concerns of Parkinson’s Disease like balance, flexibility and coordination with rhythm and music. Vonita also pulls in caregivers for her programmes, making it holistic, with end results being therapeutic. Taking on disorders like Parkinson’s Disease and Arthritis is a formidable task, especially when you are neither a therapist nor a medical person. What gave you the…
We invite you to 'Living with Parkinson's' an event for people with Parkinson's and their caregivers. Dance & Movement Therapy followed by tips on living with Parkinson's by eminent Neurologist Dr. Manoj Hunnur Date: 27th December, Tuesday Address: Prabodhankar thackeray multipurpose hall, A wing, 2nd floor, Borivali west Timing: 10.30am to 1.30pm
Gargi Ahluwalia is immensely grateful to the Support Group of Parkinson's Disease and Movement Disorder Society, (PDMDS), that helped her claim her independence over the debilitating disease. I started trembling from January 2013 when my husband was hospitalised. Four months later, when he passed away, my situation became worse. I thought it was due to stress, not realizing that it was more than that. I spoke to my family doctor and he said that I should see a Neurologist who specialized in…
"I have been a stenographer, an advocate and have obtained a degree in information technology. It has been five years since I have retired. My left hand had started giving me a lot of trouble, and was not obeying my commands. It was then diagnosed that I had Parkinson's. I live alone, and I try to focus on not being limited by anyone, and try my best to not limit others too. I have a responsibility towards myself, and I focus on that. My daily routine is very active and I like it that way…
Most of us know that Parkinson’s disease is a neurological disorder that affects our body movement. The disease progresses slowly and gradually the quality of life is affected. The rate of progression generally varies from person to person and is very individualized. As is the case with most diseases, medication is prescribed to control the progression of the disease. Nutrition is particularly important in Parkinson’s disease for many reasons: The disorder itself slows transition through…
Support Group for Parkinson's in India run by PDMDS and in collaboration with their partners. Last Update - Feb 2019 A support group is an informal gathering of people who share similar experiences, situations or problems. By meeting together, Parkinson’s Support Group members can offer each other emotional and practical support. In such a group, one is able to learn about Parkinson’s its problems and treatment. But most importantly the members share experiences and practical tips on living…
Losing a loved one especially after a long period of caregiving can be distressing and leave you with a range of different and conflicting emotions. This article by PDMDS suggests six ways to deal with grief and loss. Losing someone close to you is extremely distressing. That loss also signifies the end of your caregiver role which may create feelings of emptiness. How you cope with the demise of the person you cared for is a very personal thing. Remember, there is no right or wrong…
Parkinson's pateints develop great difficulty in swallowing during later stageof their disease. These issues are sometimes ignored or given less importance by famiy and even doctor. My advise for caregiver/famiy of a parkinson's patient is to listen…
I am regulary taking medicine syndopa plus for Parkinson. I wants to know whether I can go for Ayurvedic massage to reduce mussle stiffness . Will it be helpfull ? Please advice
Thanks & Regards,
Raju
Coping with the disease
I am suffering from early Parkinson's Disease. I am 49, working in IA&AD Department, Living in Itanagar, Arunachal Pradesh, watch me on youtube channel https://www.youtube.com/watch?v=8mLHOEVLCmQ or search early Parkinson's…
balance problem
Question from a community member:
My father, who is 75years old has been living with Parkinsons Disease for over 10years now. It was well managed so far with medication and his very active lifestyle especially walking and swimming. However in…
My friend's father has Parkinson's. He has hallucinations. Is that because of Parkinson's? Or is it due to any other reason
Early Stage Parkinson’s
Taking Control of Parkinson’s:
Make a decision today to take control of your life with Parkinson’s. The key to living an optimally healthy, happy and fulfilling life is in your hands. Here are some pointers to help you…
Welcome to our family! We are here to help you help yourself- with all the current up to date information on Parkinson’s, latest research & findings, some tips to tackle Parkinson's, discussions with experts , connect with people with Parkinson'…
Dopamine is a Brain Chemical that helps to control muscle movement. In Parkinson's Disease the brain cells that make dopamine slowly die. The resultant lack of dopamine in body leads to physical symptoms such as slowness of movement, unusual…
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