The Parkinson’s Disease & Movement Disorder (PDMDS) community is a congregation of people from far and wide who come together for a common cause close to our heart- Parkinson's Disease. Whether you are someone living with and fighting powerfully against the condition, or someone dedicating their life toward the care of a loved one with Parkinson's, or just someone who wants to learn more about Parkinson’s- you can become a part of our community. . . Because everything we do expresses our motto "Together we move better" To find out more about the support we can provide to people with Parkinson’s please visit: www.parkinsonssocietyindia.com
Can Retinitis Pigmentosa Be Prevented? As majority of the RP cases are inherited, special attention is needed to address the genetic aspect. Genetic counselling, detailed family members examination, genetic testing, understanding the pattern of inheritance, pre-natal and antenatal tests at necessary situations are very important in prevention of RP and its risk reduction in future generation. Contributed by Dr Deepika C Parameswarappa, Consultant Ophthalmologist, LV Prasad Eye Institute…
डॉ. राजलक्ष्मी अय्यर अखिल भारतीय आयुर्विज्ञान संस्थान (एम्स), ऋषिकेश में “फिजिकल मेडिसिन एंड रिहैबिलिटेशन” की प्रोफेसर हैं । वे हमें सावधान करती हैं कि यदि अच्छी नींद संबंधी आदतों को न अपनाया जाए और दवाएं नहीं ली जाएँ तो रेस्टलेस लेग सिंड्रोम (आरएलएस) जीवन की गुणवत्ता को काफी खराब कर सकता है और उत्पादकता को कम कर सकता है। रेस्टलेस लेग सिंड्रोम (आरएलएस) एक प्रकार का स्लीप डिसऑर्डर (नींद का विकार) है। क्या आप हमें इसके बारे में कुछ बता सकती हैं? यह किसे हो सकता है? आरएलएस एक चिकित्सकीय विकार है…
Veena Sheel Bhatnagar, 80, a former lecturer of Economics, has been a non-stop caregiver for over five decades to her family members, the last being her late husband Vijay Sheel Bhatnagar who had Parkinson’s Disease. Here she recounts her long journey caregiver and shares many learnings. I became a caregiver soon after my marriage in 1963 at age 22. Since then it has it has been a nonstop 50+ year journey of caregiving. Till recently, I was a looking after my husband who had Parkinson’s Disease…
Pramesh Ratnakar, English professor, author, and third generation patient of Parkinson’s Disease, rues the absence of a cure, discusses Eliot and Homer in class to overcome Covid adversities and duels unrelentingly and imaginatively with the neurological condition. Plus a reflective poem by Ankur Bashar, his student and film maker who also made the film "The Invisible Enemy". Who am I? My name is Pramesh Ratnakar. I am 64 years old. Many people call me a maverick for my iconoclastic…
Dr Prathima, 41 is a General Physician, and was diagnosed with Young Onset Parkinson’s Disease (YOPD) in her late thirties. She shares her struggles and fears, as well as her strategies for coping with the challenges and pent up tensions. Please tell us a bit about your condition I am 41 years old and was diagnosed with Young Onset Parkinson’s Disease (YOPD) approximately 4 years ago. Initially the symptoms were very subtle and being a doctor myself, I managed to get a timely diagnosis.…
Shaila Bhagwat from Pune has been living with Parkinson’s for some years now. But the lockdowns and social distancing in recent times have made her opt for online therapy sessions as well as look forward to interactions on virtual platforms. She shares how she benefitted from both. When did the online therapy sessions start for you? I am a member of the B. K. Parikh Support Group which is part of the PDMDS (Parkinson Disease & Movement Disorder Society), Mumbai, and is also a part of PDMDS…
पांच साल पहले 45 वर्षीय सुनंदिता का जीवन बढ़िया चल रहा था जब उन्हें पार्किंसंस रोग का निदान मिला। निदान पर विश्वास कर पाना मुश्किल था! इस निदान से उनका जीवन बहुत प्रतिबंधित हो गया। चुनौतियों से जूझना और उचित जीवनशैली के बदलाव कर पाना कठिन था। लेख में पेश हैं उनके अनुभव और विचार। कृपया हमें अपने बारे में कुछ बताएं। मैं एक मध्यमवर्गीय भारतीय बंगाली परिवार से हूं। मेरा जन्म और पालन-पोषण कोलकाता के उपनगरीय इलाके में हुआ है। मेरे पिता केंद्र सरकार में कार्यरत थे और मां एक स्कूली शिक्षक थीं जो बाद में…-
Five years back when she was diagnosed with an early onset of Parkinson’s Disease, much to her disbelief, Sunandita, 45, had everything going for her. Since then, it has been an uphill task living with a condition that has cramped her lifestyle in more ways than one. Please tell us a little bit about yourself, your background. I am from a middle-class Indian Bengali family, born and brought up in the suburbs of Kolkata. My father was a Central government employee and mother, a schoolteacher-…
Your life does change after you are diagnosed with a condition like Parkinson's Disease. It affects your day to day activities, your social engagements, your mental health. But what if you change your approach to life after Parkinson's Disease? Dr. Shanthipriya was diagnosed with Parkinson's Disease at age 36; Rajeev Gupta at 51 and Pramesh Ratnakar at 54. Each of them has developed a unique approach to living life as they deal with the effects of the condition.Apart from…
Samiksha Sivan, integrates her experience at PDMDS to talk about some of the negative emotions felt by caregivers of persons with Parkinsons and the how they can cope with the negative emotions like anger, resentment, guilt and anxiety. Dealing with a chronic, progressive condition like Parkinson’s disease (PD) can take a significant toll on a person, be it a caregiver or a patient. Being able to cope with everyday tasks at home and work as well as the stresses of caregiving for a Person with…
Parkinson's pateints develop great difficulty in swallowing during later stageof their disease. These issues are sometimes ignored or given less importance by famiy and even doctor. My advise for caregiver/famiy of a parkinson's patient is to listen…
I am regulary taking medicine syndopa plus for Parkinson. I wants to know whether I can go for Ayurvedic massage to reduce mussle stiffness . Will it be helpfull ? Please advice
Thanks & Regards,
Raju
Coping with the disease
I am suffering from early Parkinson's Disease. I am 49, working in IA&AD Department, Living in Itanagar, Arunachal Pradesh, watch me on youtube channel https://www.youtube.com/watch?v=8mLHOEVLCmQ or search early Parkinson's…
balance problem
Question from a community member:
My father, who is 75years old has been living with Parkinsons Disease for over 10years now. It was well managed so far with medication and his very active lifestyle especially walking and swimming. However in…
My friend's father has Parkinson's. He has hallucinations. Is that because of Parkinson's? Or is it due to any other reason
Early Stage Parkinson’s
Taking Control of Parkinson’s:
Make a decision today to take control of your life with Parkinson’s. The key to living an optimally healthy, happy and fulfilling life is in your hands. Here are some pointers to help you…
Welcome to our family! We are here to help you help yourself- with all the current up to date information on Parkinson’s, latest research & findings, some tips to tackle Parkinson's, discussions with experts , connect with people with Parkinson'…
Dopamine is a Brain Chemical that helps to control muscle movement. In Parkinson's Disease the brain cells that make dopamine slowly die. The resultant lack of dopamine in body leads to physical symptoms such as slowness of movement, unusual…
Latest Communities
Parkinson's Disease, Multiple Sclerosis, Stroke Rehabilitation, Migraine Content for Dementia and…
Pre-diabetes, Type 1, Type 2, Gestational, Complications, Diet and Nutrition, Yoga for Diabetes, Personal stories, News…
A place where Caregivers come together to share common experiences, challenges,and resources. Caregivers are…
