How To Deal With Comorbidities And Be Prepared To Re-open With Covid-19

Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Community
Auto Immune conditions
Caregiver Community
Coping With Covid-19 Pandemic
Diabetes
Kidney, Urinary, Gastro Intestinal, Liver
Mental Health and Wellbeing
Neurological Conditions
Cancer
Condition
Breast Cancer
Cancer
Chronic Kidney Disease
Coronavirus Covid 19
Diabetes
Epilepsy
Stroke
Changed
Tue, 04/13/2021 - 19:04

Stories

  • Webinar: Ovarian Cancer Awareness and Management
    This webinar is not just for Ovarian Cancer survivors but also for survivors of breast cancer, uterine cancer, colorectal cancer and all women at risk of Ovarian Cancer. Ovarian Cancer is a difficult to diagnose cancer. So it is very important for us to be aware of the surprising symptoms of Ovarian cancer. We must also know the factors that increase risk. Additionally, in COVID times, it is important to understand how to continue treatment and when you should vaccinate. We bring together a…
  • Patient Rekha on her diabetic retinopathy lived experience
    Never Neglect Eye Problems
    Rekha Khanduri, 73 from Mumbai has diabetes for a while and lost her eyesight due to diabetic retinopathy, a diabetes related complication. She talks about how she has since learnt to live with such an irreparable loss. Please tell us a bit about your condition : I have Blood Pressure as well as diabetes. In fact, I lost my left eye due to diabetes. When were you diagnosed with diabetes? About 35 years back. Diabetes runs in the family as both my grandfathers had it. My paternal grandfather had…
  • मैंने अपनी एपिलेप्सी से लड़ने के लिए दृढ़ संकल्प का इस्तेमाल किया
    दिल्ली के 37 वर्षीय विनय जानी 21 साल की छोटी उम्र से एपिलेप्सी (मिर्गी, अपस्मार) से जूझ रहे हैं। वे बताते हैं कि उन्होंने इस स्थिति से कैसे दृढ़ता से मुकाबला किया, खासकर उन चुनौतियों का सामना करने में जो समाज में बड़े पैमाने में एपिलेप्सी के बारे में कम जानकारी और गलत धारणाओं के कारण होती हैं। मुझे फोकल सीज़र (काम्प्लेक्स पार्शियल) हैं - मेरे मस्तिष्क के लेफ्ट टेम्पोरल क्षेत्र में एक गैर-कैंसर सिस्ट है जिस के कारण मैं 30-40 सेकेंड के लिए अपनी चेतना खो देता हूं। आपका निदान कब किया गया था? इसका…
  • मैं अब पूरी तरह से सीज़र से मुक्त हूँ
    एपिलेप्सी के 23 साल बाद यशोदा वाकणकर को न्यूरोसर्जरी द्वारा सीज़र से मुक्ति मिली। वे एक दशक से अधिक समय से एपिलेप्सी वाले व्यक्तियों के लिए सफलतापूर्वक एक सहायता समूह (सपोर्ट ग्रुप) और विवाह ब्यूरो चला रही हैं। मुझे बचपन से एपिलेप्सी है। मैं 7 साल की थी जब मुझे पहला एपिलेप्सी का सीज़र हुआ। मैं दिन भर बेहोश रही। बाद में मुझे लेफ्ट टेम्पोरल लोब एपिलेप्सी का निदान मिला। पहले तो मुझे महीने में 2-3 सीज़र होते थे, लेकिन मेरे सीज़र दिन-ब-दिन बढ़ते गए और मुझे महीने में 5-10 तक सीज़र होने लगे। Read in…
  • A panel discussion on Kidney Cancer with the profile pictures of the panelists
    Demystifying Kidney Cancer : Key Webinar takeaways
    Renal cell carcinoma is the most common type of adult kidney cancer, making up about 85% of diagnoses. And yet it is rarely talked about.  Kidney Cancer is also an area which has seen significant progress in treatment options. Key takeaways from the webinar are given below.  An expert panel talked about kidney cancer and answered questions and concerns that patients have. The panelists are Dr. KL Jayakumar, MD Radiation Oncology. Professor and HOD, Sreemookambika Cancer center,…
  • Mukta holding a bouquet of white flowers and a pink ribbon as a design element for breast cancer
    From Being A Caregiver To A Breast Cancer Patient
    Mukta Bhonsule, 55 was diagnosed with stage 3 breast cancer 9 years ago in Mumbai. She shares her journey with breast cancer, the survivorship issues she deals with and the challenges of balancing this as a caregiver of a COPD patient. I was diagnosed with Grade 3 Stage 2A Breast Cancer(HER 2+) in May 2013. What were your early symptoms. I was on a holiday in Goa and it was very hot there. When I got back, I had itching in my breast which I thought was due to heat and sweat. I spoke to my…
  • A woman with epilepsy in purple dupatta holding a book
    मैं एपिलेप्सी वाले व्यक्तियों के लिए अधिक स्वीकृति की कामना करती हूं
    चंडीगढ़ की 49 वर्षीय प्रीति सिंह एक सफल लेखिका हैं, जिनकी नवीनतम पुस्तक 'ऑफ एपिलेप्सी बटरफ्लाइज़' एपिलेप्सी (मिर्गी) के विषय पर एक सटीक एवं उपयोगी पुस्तक है। उन्हें दो साल की छोटी उम्र से एपिलेप्सी है, और इस लेख में वे बताती हैं कि कैसे जीवन के उतार-चढ़ाव ने उन्हें स्थिति के साथ जीना सिखाया है और कैसे समाज एपिलेप्सी वाले लोगों से मुंह मोड़ लेता है। आपको निदान कब किया गया था? क्या आप हमें शुरुआती लक्षणों के बारे में बता सकती हैं? जब मेरा जन्म हुआ, तो नर्स ने मुझे गिरा दिया था, और उस समय लगी सिर…
  • Rima standing behind her father who is in a wheelchair and has a pillow on his lap
    Writing Made My Father Come Alive In The Novel
    Rima Pande in her debut novel, His Voice, writes a fictionalised narrative about the teeming thoughts swirling in her father’s mind for two years as he lay conscious but paralysed and unable to speak due to two successive strokes in a month. There are great insights into caregiving. Read it. Could you tell us a little bit about the experience that led to your writing ‘His Voice’? My father had two successive strokes within a month, leaving him paralyzed and unable to speak or communicate in any…
  • Webinar: Towards Patient Centred Access To Quality Cancer Care - Challenges
    PatientsEngage and EHA Consortium invite you to an interactive webinar series on Patient Centred Access to Quality Cancer Care. In the first of the series aligned to the UICC theme of "Close the Care Gap", we are very privileged to have an esteemed and diverse panel who will highlight the challenges faced in equitable access to quality cancer care and identify the areas where we still need to make progress. The panelists are Dr. CS Pramesh, Director Tata Memorial Hospital; Convener National…
  • Dangers Of Excess Salt, Sugar and Junk Food On Children's Health
    A panel discussion with Dr Rajan Ravichandran and Dr Arun Gupta highlighted the need for better product labeling and regulatory changes around advertising and marketing of processed foods. For parents to be aware of the link of salt, sugar and ultra processed foods with diabetes, hypertension and Chronic Kidney Disease in children. (Video below) Participants: Aparna Mittal, Founder , PatientsEngage (AM) Dr Rajan Ravichandran – Senior Nephrologist (RR) Dr Arun Gupta – Pediatrician (AG) AM : Why…