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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
Tue, 04/13/2021 - 19:04

Stories

  • पैर में ऐंठन - कारण और बचाव के उपाय
    क्या आपको कभी-कभी अपनी पिंडली की मांसपेशियों में या पैर के अंगूठे में अचानक ऐंठन होती है? इस लेख में डॉ. शीतल रावल पैर की ऐंठन की समस्या के कारण बताती हैं और इस समस्या से छुटकारा पाने के लिए कुछ टिप्स देती हैं पैर में ऐंठन ज्यादातर व्यक्तियों द्वारा अनुभव की जाने वाली एक सामान्य लेकिन हानिरहित स्थिति है। (कनाडा और अमेरिका में मुख्य रूप से इस स्थिति को चार्ली हॉर्स कहते हैं)। यह समस्या अकसर पिंडली के क्षेत्र में मांसपेशियों के अचानक दर्दनाक संकुचन से होती हैं। ऐंठन कुछ सेकंड से लेकर कुछ मिनटों…
  • A picture of the skies with a text overlay of clicking the skies calmed me down
    Small Ideas Big Results To Carry On Life During Cancer
    Nidhi Maini shares her many challenges with breast cancer, how she found solutions to deal with these challenges, what worked as well as what was not helpful. She also shares some of the photographs she took to help her cope. I was diagnosed with breast cancer in August 2019, a few days after I turned 43. It came as a shock; well, it sounds cliched but, it was a bolt out of nowhere. I was living a fairly healthy life or so I believed. There was no indication of anything amiss till I…
  • Composite pic of Prima and her father with stage 4 cancer and the father in the garden on the phone
    My Father's Journey With Stage 4 Cancer
    Prima shares the challenges of caring for her father who was diagnosed with stage 4 cancer of the ureter and kidney, the effect that COVID had on the treatment choices, the pain he went through, the palliative care choices and the emotional turmoil of it all. I vividily remember that afternoon when he implored, “Take me to the doctor, I’m uncomfortable. I’m in pain and want to sleep”. My husband gave him his morphine pill and told him we would go see his doctor soon. He kept saying, he wanted…
  • A picture of a moon shining over a body of water
    चाँद को निहारने से मिला कोविड पैन्डेमिक में सुकून
    महामारी की दूसरी लहर में स्व-सहायता की पुस्तकों की लेखिका उषा जेसुदासन ने पाया कि प्रियजनों को अचानक खो देने पर वे पूरी तरह से सुस्त  पड़ गयीं, पर तब चंद्रमा की चिरस्थाई रौशनी और सुन्दरता ने फिर से उनमें आशा जगाई। इस लेख में वे अपने अनुभव साझा कर रही हैं - इसे पढ़ें और कोविड के विषाद  को हटाएं। पिछले साल मई जून में महामारी हमारे लिए एक नई परिस्थिति थी। हमें यकायक सख्त लॉकडाउन का अनुपालन करना पड़ा। हम चित्र देख रहे थे जिन में गरीब प्रवासी मजदूर अपना सारा सामान प्लास्टिक की थैलियों या…
  • Upcoming Webinar: Sarcoma - A Forgotten Cancer
    Navigating Care and Survivorship Issues of Sarcoma, A Rare and Forgotten Cancer Sarcoma is a rare and complex type of cancer that is often misdiagnosed or diagnosed late. It also requires a multi-disciplinary approach. There are also long term issues that survivors face. We speak with a distinguished panel of sarcoma experts and survivors who are trying to address the various diagnostic and survivorship challenges of this forgotten cancer Our panelists are Dr. Sameer Rastogi, Medical Oncologist…
  • A plate of rolled cheela - crepe made from sprouted green gram and chickpeas
    ओट्स और स्प्राउटेड ग्राम चीला
    चीले  या वेजिटेबल ऑमलेट् या क्रेप्स एक अच्छा एक डिश का भोजन (एक डिश मील) है। यह  एक उच्च प्रोटीन और उच्च फाइबर की रेसिपी है जो  सभी के लिए अच्छी है, विशेष रूप से मधुमेह वाले लोगों के लिए - मधुमेह जागरूकता और आप द्वारा योगदान दिया गया है दो लोगों के लिए चीले के लिए सामग्री अंकुरित (स्प्राउट्स) हरा चना और छोले का पेस्ट - 30 ग्राम ओट्स - 15 ग्राम कसी हुई गाजर - 20 ग्राम कटा हुआ हरा धनिया कटा हुआ टमाटर -1 कप बारीक कटी हुई मिर्च - १ दही -15 ग्राम लो फैट पनीर - 2 क्यूब्स हल्दी पाउडर…
  • Overlay text of late effects of cancer treatment
    Long Term Effects of Cancer Therapy
    Very little is talked about the late effects and long term effects of cancer therapy. Dr Sushma Agrawal, Professor, Department of Radiotherapy, SGPGI, Lucknow, India addresses questions around late effects in cancer survivors and the impact on quality of life. The intent of this article is to ensure that patients and their families are prepared and can discuss this with their physician and to take pro-active steps to prevent or manage these effects. 1.   In your opinion, time-wise,…
  • धूम्रपान छोड़ने के बाद मेरे सांस लेने में और सो पाने में सुधार हुआ है
    रमेश कोप्पिकर 35 वर्षों से भारी धूम्रपान करने वाले व्यक्ति थे और उन्होंने धूम्रपान छोड़ने के कई असफल प्रयास किए थे। आखिरकार उन्हें जब दिल का दौरा पड़ा तो उन्हें निकोटीन की लत और धूम्रपान की आदत से हमेशा के लिए छुटकारा पाने का हौसला मिला। पढ़िए उनके द्वारा शेयर की हुई उनकी कहानी। मैंने सिगरेट पीना 23 साल की उम्र में शुरू करा था- उन दिनों मैं बीएचयू वाराणसी में इंजीनियरिंग की पढ़ाई कर रहा था । मैं कैंपस के हॉस्टल में रह रहा था और मैं और मेरे दोस्त रात के खाने के बाद टहलने जाया करते थे। बीएचयू का…
  • Fully Alive Thanks To The Dialysis Machine And My Will Power
    Samiir Halady, has lived with Chronic Kidney Disease for 20 years and is now a transplant recipient. He shares how he balances the challenges of living with his work and his love for trekking and travel. And the secret ingredients that keep him going. Please introduce yourself Samiir I am Samy or Sam (as my friends address me). I have been doing peer counselling for last 15 – 16 years and from 2020. I drive some of the initiatives of the Amar Gandhi Foundation. I am a sensitive, emotionally…
  • A woman with epilepsy in purple dupatta holding a book
    I Wish For Greater Acceptance For Persons With Epilepsy
    Preeti Singh, 49 from Chandigarh is a successful author whose latest book ‘Of Epilepsy Butterflies’ is hitting the right notes. She herself has been living with epilepsy since the young age of two, and here she talks about how life has taught her to live with the condition through ups and downs and how society turns its face away from people with epilepsy. When were you diagnosed? Can you tell us about the early symptoms? When I was being delivered as a baby, I was apparently dropped by the…