Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • An open and fallen bottle of pills spilt on the table
    What Every Patient And Caregiver Should Know About Opioid Drugs
    Opioids are essential to pain management in patients with chronic and severe pain. Since they are narcotic medications and have side-effects, it is important for patients and caregivers to be aware of the type of Opioid that has been prescribed and possible adverse reactions. Excerpted from Indian Primer of Palliative Care by Pallium India.  Opioids are a class of drugs that are used in pain management in patients with chronic and debilitating pain. They work by binding to opioid…
  • Pain Assessment Scale in colour from green to red
    How to Assess and Manage Pain
    People often have to deal with pain and it is difficult to assess the level of pain across different people. Pallium India has created the Indian Primer of Palliative Care for care providers. With their permission we have excerpted important elements that are useful to understand and manage pain.  Many people with chronic diseases will complain of pain and it being the most overpowering symptom of their condition. Besides physical discomfort, pain affects mental and emotional wellbeing…
  • A Father's Wish For Awareness And Inclusion Of Autism
    A dad of a 25 year old adult on the autism spectrum, and a member of the SCAN support group, Chennai shares the challenges faced by his son, the techniques deployed to overcome these and enable him to be an independent young adult. #AutismDad  Today my son is 25 years old, a MBA post graduate with work experience in Human resources from a reputed company.  My son’s childhood days with autism Looking back it has been a roller coaster ride filled with challenges from the time my wife…
  • How Yoga Helped Them In Managing These Five Chronic Conditions
    Can Yoga help people manage their chronc conditions? We picked out a wide range of conditions where patients have benefitted from practice of yoga.  It is fairly well known that people with certain conditions like Diabetes, Hypertension and Arthritis benefit from regular practice of yoga. You can also download our ebooks on the same from our E-Books Resources Page.  But the benefit of yoga goes beyond that to neurological conditions like Parkinson's and  Epilepsy, auto-immune…
  • Family pic inside a room of a young woman with a white dupatta seated with her silver haired father in a striped green and yellow t-shirt on the left and her mother standing behind them in a red sari and blouse
    A Father's Strong Bond With His Daughter On the Autism Spectrum
    Mr B. Sriram, father of Aishwarya, 38 on the autism spectrum shares a detailed account of their journey through the years, the various milestones, the challenges and successes in helping her become independent.    Aishwarya Sriram, 38, is our ‘child’ with autism, female, being rarer than male on the spectrum. Unless one talks to her it is difficult to guess her condition. There is a popular Chinese proverb that goes: ‘The wind never ceases to blow even if the trees want to rest…
  • Are Dads Of Special Needs Children Getting More Involved in Parenting?
    Gopinath Ramakrishnan, Co-Founder and Managing Trustee of Special Child Assistance Network (SCAN), a support group for families of special needs children, reflects on the involvement of Dads in parenting.  When we started the parent support group Special Child Assistance Network (SCAN) in Chennai back in 2015, it was mostly a women and children group. Yes, there were a couple of us dads hanging around, but it was by and large comprised of, and driven by the moms. In fact, the WhatsApp…
  • A woman in a red dress with her elderly father on the right at a laid out table with a green checked tablecloth
    Life Comes Full Circle As I Turn My Dad's Caregiver
    Jyotsna Kumar who lives with Sensiro Neural Deafness reflects on her father, his loves and interests and how her relationship with him has evolved and come full circle as she now cares for him. For my father, on Father’s Day: He cracked open walnuts on door hinges for me. He was the only one in the house who was fearless with lizards and insects. When it rained, he got the car and brought it around to the door. When I was sick he would take me to the doctor and get me my medicines. He would cut…
  • An image which has a vector image of a child on the father's back with the heading - A father child relationship is special
    A Father's Support Truly Matters
    Happy Father's Day This Father's Day we share heartfelt messages from our contributors on their fathers and the significance of the support of their fathers in their journey with chronic conditions and disabilities. If you have a thought to share, do write in to us and we will publish it. Or leave us a comment below. Preethi Srinivasan - He (My father, Srinivasan Narasimhan) was my best friend.  Swati Agrawal - He (Sanjeev Agrawal) helped me through the gloomiest of days  Vijay…
  • A mom in a printed top and black skirt flanked by her adult sons, the one on the left with a dark t-shirt and the one on the right with a blue t-shirt. In the background is a red car parked in front of a building on the right and a fence and trees on the left
    I Am Here Because Of Your Love, Maa
    Vineet Saraiwala, Inclusion Lead, Future Retail Limited, pays an emotional tribute to his mother, a mother of two sons with Retinitis Pigmentosa. A Mother's Day Special. It was my mother’s destiny to have two sons, both with retinitis pigmentosa (RP), a degenerative disease in which vision deteriorates as age progresses. We, my brother and I, are glad that we are not alone in this journey as our mother is equally there in our struggles for the past 25 years. But we never noticed it. My mother’s…
  • A collage of pictures of Nikita with autism mom Anupama Bakhshi and her brother Pranav
    Thank You Mom, For Being The Wind Beneath My Wings
    Not all superheroes wear capes! Nikita Bakhshi appreciates her mother Anupama, not only for all that she has done for her brother, Pranav who is on the autism spectrum but also for the unconditional love she shares with her daughter. A Mother’s Day special! Mother’s Day, or let me say ‘I will post a picture with a long caption day’ – Hold your horses. I’m not saying that’s wrong, I very often post pictures with my mom on my instagram too and shower her with instagram PDA, nobody deserved it…
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New Discussion for Caregiver comm some description
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
hello
hello friends
AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
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