Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

    Login To Join
    Add Discussion
  • Dealing With The Behavioural Challenges Of Alzheimer's
    Nishi Pulugurtha writes about the challenges of being a caregiver to an Alzheimer’s patient, her mother, and the travails that came with it. “Let us go home,” Amma said this often. There was nothing strange about this sentence, all of us would love to be back home at some point of time or other. What makes Amma’s statement important is that when she said this, she was actually at home. I used to tell her that. It made her keep quiet for a while. She would go back to doing something. It was…
  • How To Prepare For A Medical Emergency At Home
    We are often caught unawares by medical emergencies. But it does not need to be so. We can plan and reassess the plan regularly. Here are some guidelines and pointers on what you should consider.   It is unnerving when a loved one falls suddenly and seriously ill at home, or there is an accident. The family member may feel disorientation and denial, hoping to just wait out, or may thrash about like a headless chicken trying to arrange for transport to the hospital and unsure what to…
  • There Are A Lot Of Things To Look Forward To
    Iftikhar Zia, together with the rest of the family, has been Zoyeb’s main support system. Zoyeb suffers from a rare neurological condition called Ataxia. Iftikhar on the journey and the accomodations required in schools, colleges to support Zoyeb’s drive for professional success. Please tell us about your son’s condition My son was diagnosed with Ataxia at 16. It is a neurological disorder affecting the balance causes poor coordination of the limbs poor gait movement slurs the speech and…
  • A couple posing and taking a selfie
    How I Take Care Of Myself To Be A Better Caregiver To My Wife
    It is important for caregivers to seek help and advice of mental health professionals to ease their journey of caregiving and keep the relationship strong, says Abhimanyu Argal who looks after his wife with Borderline Personality Disorder. Could you give us a little background about yourself? I am 30 years old. I'm self-employed, working in the real estate industry as a developer. I am an engineer by qualification. You are a caregiver to your wife, Sheeba. Please could you describe her…
  • Evolving Personalities of Persons with Disabilities: Webinar Tomorrow
    Join us tomorrow Friday 30th August 2019 for an insightful session where we discuss the role of self advocacy and self determination among persons with disabilities. How did they push the barriers to become independent and create possibilities? Topic People tend to develop their personalities from the different things that they get to know and do in their lives, which may also have an impact from time to time. People develop their personalities at all ages and it is a constant shift for…
  • "Believe In Your Child"
    In our conversation with Anupama Bakhshy, mother of Pranav Bakhshy, a budding model and a young man on the autism spectrum, we gleaned a few insightful learnings based on her experience. Key take aways for parents of children with special needs, particularly Autism: 1. Keep the child or the young adult at the centre and not his/her disability. 2. Believe in the child. Just because its not been done before, it does not mean it can't be done 3. Follow the child. Align to the child's inclinations…
  • How We Helped Our Son On The Autism Spectrum Deal With Disaster
    Looking at the severe floods affecting Kerala this year, Anita Pradeep reminisces how she and the family, along with her 25 year old son, Sachu, got marooned in the floods last year and how they managed to keep Sachu calm and brave in the face of adversity. Today is 15th August 2019, a day that brings back to mind three days that seemed like three months last year in 2018. Memories come flooding back just like the floods that are lashing out at certain parts of the state. The only difference…
  • "But The Pain Does Not Leave Me"
    Anal Shah's son was 15 years old, when he developed a sudden fever and after a struggle of 20 days, died of multi-organ failure on 27th June 2017. She still struggles with her grief and wrote this heart wrenching note 20 months after his death. To all those who persistently feel I should MOVE ON after my child's death! It seems that my face reminds you of your own mortality. What if something similar happened to your child or your family member? What if you have to endure pain like me? That…
  • A child lying in bed with soft toys on either side of him
    'My Son Continues To Inspire The Perpetual Fight'
    Tahira Tahir from Pune is the Regional Coordinator of Cure SMA Foundation of India and a passionate parent advocate for access to the treatment options for Spinal Muscular Atrophy Type 1, despite losing her son to this rare disease. It’s been less than a year since I heard my life’s most shattering news, although it feels like I’ve travelled ages since then. In October 2018 my angel, the most beloved part of mine, my son Sameer Ahmad was diagnosed with a fatal, debilitating, rare neuromuscular…
  • Responders in yellow outfit helping in disaster management
    Be Prepared For Natural Disasters
    Natural Disasters can adversely affect elderly people and those with chronic conditions. Dr. Shital Raval details the issues faced and how you can be prepared if you are a caregiver to an elderly person or have a chronic condition like Diabetes, Renal and Respiratory Issues, Allergies, Cancer.   Natural Disasters (earthquakes, floods, hurricanes, electrical black-outs, blizzards, cyclones, storms etc.) can have a devastating effect on all but recent studies have thrown light on how…
New Discussion for Caregiver comm
New Discussion for Caregiver comm some description
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
hello
hello friends
AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
no details

Latest Communities

  • Neurological Conditions
    2889 member(s)
    Parkinson's Disease, Multiple Sclerosis, Stroke Rehabilitation, Migraine Content for Dementia and…
    Login To Join
  • Diabetes
    21067 member(s)
    Pre-diabetes, Type 1, Type 2, Gestational, Complications, Diet and Nutrition, Yoga for Diabetes, Personal stories, News…
    Login To Join
  • Caregiver Community
    2310 member(s)
    A place where Caregivers come together to share common experiences, challenges,and resources.  Caregivers are…
    Login To Join