Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Turning off life support
    What happens when doctors and family members don’t agree and you don’t have a living will? Lawyer Lyn Boxall describes scenarios in the US, Singapore and the UK. What is a living will In the US and Singapore, a person can make a ‘living will’ – officially, an ‘advance medical directive’. In Singapore, it’s a document that a person signs and that applies when the person is terminally ill and unconscious or incapable of making a rational decision. It instructs their treating…
  • She lives in the present, forgets the past and can’t think of the future, so I try to be that way too
    She reduced her mother's medications to a minimum. Side effects may have also played a role in Asayo’s agitation and violence, said Steve Iliffe, professor of Primary Care for Old People at University College London. She let her mother walk.. “Walking is therapeutic and helps reduce disturbed behavior and sleep,” he said. “Letting her wander saved us and made us happy,” Akiko said. “It was unbelievably disturbing and stressful to keep my mom in the house.” Wandering alone, though,…
  • Its ok to cry and laugh, to take time out for yourself
    This touching and poignant documentary – “Portraits of Care” –  looks at the lives of four amazing Caregivers and gives a rare glimpse into the realities of long-term care in India. A husband as caregiver, a wife as caregiver, daughters as caregivers Issues with home care agencies, dealing with absent and interfering relatives, caregiver stress and the financial challenges How to take time out for yourself, how to deal with your anger and frustration Celebrate the little…
  • Role of the family and caregiver of a MS patient
    Multiple Sclerosis or MS is a disease that can easily lead to feelings of isolation. Typically, at some point, it leads to significant physical disability and forces people to leave paid employment. It is particularly difficult as MS hits patients when they are young, just starting a family or developing their career.  The spouse or other family member has to take on the responsibilities of caring for the patient, children and supporting the family financially. As the…
  • Old photos helping trigger memories in people with dementia
    Pictures taken by a little-known photographer between the 1930s and 1960s have found a new use helping to trigger memories and reminiscences among people with dementia. "In the dementia care world reminiscence is up there as one of the leading groups of therapeutic approaches," explains Prof Bob Woods, an expert in the clinical psychology of older people at Bangor University. "Essentially it's a good way of facilitating communication, and so it helps people to feel more socially integrated and…
  • Alzheimer's patients can still feel emotion long after memories have vanished
    A new University of Iowa study further supports an inescapable message: caregivers have a profound influence -- good or bad -- on the emotional state of individuals with Alzheimer's disease. Patients may not remember a recent visit by a loved one or having been neglected by staff at a nursing home, but those actions can have a lasting impact on how they feel. The findings of this study are published in the September 2014 issue of the journal Cognitive and Behavioral Neurology. "Our findings…
  • The Last Days
    What kind of end-of-life care do you want? Don’t leave the burden of such decisions on your loved ones. Make a living will, which will speak for you when you are unable to, says lawyer Lyn Boxall. About two years ago, I answered a phone call from my sister. She lives in my home town, Adelaide in South Australia, and I’ve lived in Singapore for many years. “Mum was found unconscious on the floor of her bathroom this morning and now nothing she’s saying is making any…
  • "Our first clue that something was wrong was in 2012, when she started saying the same thing again and again"
    It may not seem like much, but for Maya, the daily battle over the bath is a sign of further deterioration as her 69-year-old mother slips deeper into her dementia, her personality changing, her memories fading, and simple everyday tasks becoming insurmountable hurdles.  http://www.hindustantimes.com/lifestyle/wellness/world-alzheimer-s-day-lack-of-help-care-in-india-for-patients/article1-1266659.aspx
  • Simple test can help detect Alzheimer's before dementia signs show, study shows
    York University researchers say a simple test that combines thinking and movement can help to detect heightened risk for developing Alzheimer's disease in a person, even before there are any telltale behavioural signs of dementia. "We included a task which involved moving a computer mouse in the opposite direction of a visual target on the screen, requiring the person's brain to think before and during their hand movements," says Sergio in the School of Kinesiology & Health Science. "This…
  • A Marriage to Remember - a filmmaker explores how Alzheimer’s disease has revealed the strength of his parents’ marriage
     "The experience of caring for someone with Alzheimer's can be incredibly isolating, at a time when you need support the most. We are grateful that this process has helped us come together as a family and as a community to celebrate that most precious gift of all : our memories"   http://www.nytimes.com/2014/08/26/opinion/a-marriage-to-remember.html?emc=edit_th_20140826&nl=todaysheadlines&nlid=53809129&_r=0    
New Discussion for Caregiver comm
New Discussion for Caregiver comm some description
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
hello
hello friends
AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
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