Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Sir Terry Pratchett, fantasy author, died eight years after being diagnosed with Alzheimer's disease
    Sir Terry Pratchett, 66, fantasy author, died eight years after being diagnosed with Alzheimer's disease. He was the creator of Discworld series "Terry faced his Alzheimer's disease (an 'embuggerance', as he called it) publicly and bravely," said Mr Finlay. Knighted in 2009, he said: "It would appear to me that me getting up and saying 'I've got Alzheimer's', it did shake people." "The thing about Alzheimer's is there are few families that haven't been touched by the disease. People come up to…
  • Jill Bolte Taylor : My Stroke of Insight
    Brain researcher Jill Bolte Taylor who dedicated her life to understand the brain, had  "But on the morning of December 10, 1996, I woke up to discover that I had a brain disorder of my own. A blood vessel exploded in the left half of my brain. And in the course of four hours, I watched my brain completely deteriorate in its ability to process all information. On the morning of the hemorrhage, I could not walk, talk, read, write or recall any of my life.…
  • 10 Rules on being a Caregiver's friend
    Your friend is a caregiver and you don't know how to help...here are 10 tips  1. Don’t say, “What can I do to help?”. Just do it. 2. Remember me before I was a caregiver  3. Please don’t stop including/inviting me. I need to know I am wanted. 4. Don’t try to fix my situation. Don’t stop being the listener you always were. 5. Let me know you think of me – Many days I feel forgotten by the world.  6. Follow my lead – There are times I need to talk. Sometimes I just…
  • Actor Nagarjuna for popularisation of palliative care treatment
    “When I remember my mother, it makes me really sad. But, when I remember my father, it makes me smile,” said actor Nagarjuna, referring to the need to have a fully evolved palliative care treatment options for terminally ill persons. "Despite being able to afford the best medical care, my mother endured a lot of pain for seven years due to various health complications. Not a single doctor came to us and told us that there was an option for us in palliative care,” he lamented. The actor spoke at…
  • Top 10 meditation apps
    1. Buddhify This nicely-designed UK-created app is aimed at busy urbanites. You tell it whether you’re at the gym, walking, commuting or home.  2. Sleep Easily Meditation There’s a 25-minute guided meditation that combines soothing music with talking you through the relaxation process.  3. Calm – meditation and relaxation There are seven guided sessions running from 2-20 minutes with a range of background scenes and sounds to choose from Free for iOS and Android 4. Smiling Mind…
  • 5 Biggest Issues That Sabotage Family Caregivers
    By Paula Spencer Scott, Caring.com contributing editor Caring for an aging parent or other loved one in your home usually begins with the best of intentions. Over time, however, a good thing can disintegrate into a tough, tense situation. Knowing the top trouble spots can help you make changes that can delay or avoid the need to move on to out-of-home placement. Here are five big "sore points" that undermine family caregiving -- and what to do about them: Sore point #1: Lack of privacy…
  • 30 minute nap can reverse effects of sleep deprivation
    Sleep deprivation is rampant. A 30 minute nap is beneficial to your health!  This article specifically talks of the negative effects of sleep deprivation in caregivers :  forgetfulness, lowered alertness,premature aging,  decrease creativity, lower immune system, increased risk of stroke, diabetes, unwanted weight gain and increased possibility for a heart attack. Caregiver statistics show caregivers are often exhausted at the end of the day. Many  find that they…
  • State-of-the-art dementia treatment facility is a 1950s era village - Hogewey
    Hogewey is an amazing "village" on the outskirts of Amsterdam. It's a step back into the 1950s boasting pretty, manicured streets, a grocery, cafe, coffee shop, restaurant and even a beauty salon and barber shop. There are 152 residents in Hogewey, and all have something in common—dementia. Hogewey is a treatment facility for dementia and Alzheimer's patients. It is set in the 1950s because the dementia patient's long term memory is preserved much more vividly than short…
  • The longevity tips from the Blue Zone
    Dr. Sanjay Gupta explores the principles of longevity and better health in this video in this blue zone journey as he talks to Dan Buettner, the author of Blue Zone Solutions The 4 longevity takeaways capture the 9 tips very well: 1. Move Naturally - Without even thinking about it  2. Eat wisely- More plants, less red meat, a glass of wine with a social group of moderate drinkers 3. Belong - Volunteer, Gives a sense of purpose and makes you want to get out of bed 4. Connect with people -…
  • Healthcare opens new roles for professionals willing to train and re-train
    We in India and Asia will also need to look at the sector and the staffing needs carefully to ensure we have enough nurses, therapists and other specialists healthcare professionals to meet the growing needs in Asia. We need to come up with strategies to keep them in their home countries and not lose them to the developed markets. http://www.nytimes.com/2015/02/23/business/economy/health-care-opens-middle-class-path-taken-mainly-by-women.html?_r=0
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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