Rheumatic conditions like Lupus, Anklosing Spondylitis, Scleroderma and Sjogren's Syndrome affect people in a myriad ways. These often create body image issues and impact self esteem.
We will speak with patient leaders Kirtida Oza, Neetu Wadhwa, Vachasamrita, Ami Shah and Mental health therapist Arouba Kabir on the common issues faced by persons with Rheumatic Conditions and how they can reclaim their self esteem.
Kirtida is founder Sjogren's India
Neetu Wadhwa is co-founder Scleroderma India…
Unofficial statistics from India indicate that there are nearly 300 deaths every day due to organ failure, translating to more than one lakh deaths per annum. Its time to step up and do what we can do something to save lives You Too Can Save Lives #SaveLives #OrganDonationAwareness #Donate #LiveOn Over the next few days, we will do a series of webinars to address all your questions and concerns on Organ Donation as a donor and as someone waiting for a transplant You will also…
Schizophrenia Research Foundation (SCARF) India recently did a cross sectional study on the association between family distress on loneliness and coping during COVID-19. Researcher Sanjana Goutham explains findings and suggests solutions. Can you describe the study on loneliness during Covid-19? The present study was done to estimate the prevalence of loneliness among general population during the COVID-19 pandemic in India. Along with that, association between family distress and loneliness…
PatientsEngage held a webinar recently on ‘Dads can make a difference to emotional well-being of a special needs family’ with three well-informed and articulate fathers as panellists sharing their experiences, understanding and insights. We bring you some interesting highlights. Fathers with children on the autism spectrum disorder (ASD) experience many challenges of parenting. Though their involvement may be less as compared to mothers, they still need to play an integral and important role in…
Diethono Nakhro’s life changed after an accident in 2006 which rendered her paralysed neck down. Positive, empathetic and relentless, not only did she pick up the pieces after that, she has brought in sweeping changes for the disabled community in Nagaland, advocating for Disabled Rights and also as the State Commissioner for Persons with Disability, a position she does not wear lightly. The Accident and Thereafter I’m quite an extrovert and I led a very active lifestyle before my car…
Since the outbreak of the COVID-19 pandemic, doctors, nurses, attendants and other healthcare workers are actively engaged on the frontlines to manage patients. They have a high risk of developing anxiety, depression and stress during this period. Dr. Milan H Balakrishnan MD DPM, Consultant Psychiatrist and Counsellor at Bombay hospital and Masina hospital, Mumbai helps us understand the issues better. A few studies have been carried in the recent months to assess the mental impact…
There are more than 100,000 deaths per annum in India due to organ failure. Most of these could have been prevented if there were enough organ donors. Jaya Jairam, Project Manager MOHAN Foundation addresses the myths and misconceptions that exist and urges each one of us to be an organ donor. It is estimated that more than a million Indians suffer from end stage organ failure annually, while only around 10,000 are able to get a life-saving transplants in a year. Unofficial statistics from…
As fatalities due to Covid-19 continues unabated, conversations about death gain relevance. We speak with Dr Sneha Rooh, a palliative physician, who has hosted 32 Death Cafes for the purpose of talking about death. You have introduced a radically new concept to India in the form of Death Cafés. Could you tell us something about these Cafes and what really happens there? Death Cafes are places where strangers come together to talk about their experiences and thoughts about death, dying, caring…
Dr Avinash De Sousa, consultant psychiatrist and psychotherapist, talks about how bereavement counselling has become crucial in the times of Covid -19 to deal with sudden deaths and inability to mourn satisfactorily. In times of the Covid pandemic, terms like grief therapy and bereavement counselling have gained significance. Could you tell us a little bit about these concepts? Grief Therapy is a form of therapy which is administered by means of counselling or psychotherapy to an individual who…
