Caregiver Community

  • Caregiver Community
    2310 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Walking With A Loved One With Bipolar Disorder: Rewarding Yet Taxing
    Hvovi Bhagwagar, a clinical psychologist who works a lot of persons with Bipolar Disorder and their families, puts the spotlight on challenges faced by the family caregivers and what they can do to help the persons with Bipolar Disorder as well as themselves.  Arman is a 32-year-old social activist. He is well-respected for his many welfare activities. Diagnosed with Bipolar II disorder in his teens, his life has been a constant internal struggle. His parents, one of whom was diagnosed…
  • Stock pic of a woman and man holding hands in support
    Support Those Who Have Lost a Loved one to Suicide
    Losing someone to suicide can be traumatic. Nyana Sabharwal, who lost her mother to suicide, co-founded We Hear You, a support group for those bereaved by suicide loss, as an important way to heal, cope and overcome grief. You have set up a unique and distinct peer support group for those bereaved by suicide loss. Could you tell us a little about it? ‘We Hear You’ was set up a year ago to help people who are experiencing bereavement by suicide loss to have a safe space to talk about their…
  • What Is Diabetes Distress And How to Handle It
    Managing your diabetes can seem like a never ending task that leaves you emotionally drained. Dr. Indu Elizabeth Mathew, Consultant, Department of Endocrinology, Ernakulam Medical Centre talks of the concept of Diabetes Distress and how it affects Type 1 and Type 2 patients and their family members and what they can do about it. Updated on 24 March 2019 with the Diabetes Distress Study Details What is Diabetes Distress? Are there different types of distress and worry that affect people with…
  • Patient And Parent Have To Live Through Life With A Lysosomal Storage Disorder
    Mr Manjit Singh, President Lysosomal Storage Disorders Support Society, shares some salient points about the rare disease and about the activities of the organisation, LSDSS. The LSDSS is a national level society with more than 400 patients as members who are represented by elected parents as office bearers, across India. The sole motive of the organisation is to spread awareness about this rare disease as also to help each other in availing of the best facilities available. What are Lysosomal…
  • Are You A Tired And Stressed Caregiver?
    It is extremely important for caregivers to maintain their own emotional and physical health and wellbeing to be able to effectively help others, writes Usha Ravi. Also, take the simple self-test below to find out if you are a satisfied or fatigued caregiver. The art of being kind, caring, loving and understanding - all of which will be ineffective if one loses oneself in this process of caring. Hence, to preserve oneself, self-care is crucial. Self-care is considered as simply giving the same…
  • In Sickness And In Health
    A Valentine's Day Special This Valentine's Day we asked the spouses of a few of our contributors how they supported their partners during difficult times and what they would advise other spouses. They shared tips that work for their partners - practical tips, care tips, emotional tips. We look forward to hearing from each of you what works for your relationship. Santanu Syam on his support for Piali who had Choledocal Cyst I ensured that I was always with her at the doctor’s chamber and the…
  • Play Should Be Accessible To Every Child
    Can you imagine a child who has never been to a playground or a park, never been able to swing or slide! For whom open play spaces are forbidding and unfriendly. Today, in India nearly all existing outdoor play spaces are built without keeping in mind the needs of a child with disability. Children with disabilities and developmental differences are forced to stay away from playgrounds because they are inaccessible, do not have appropriate facilities and play infrastructure for them. When…
  • Stock pic showing a young teen on the left scared and traumatised by something on his laptop. There is a lamp that shines directly on the laptop and there is a large shadow on the wall.
    Cyberbullying: The Downside Of A Connected World
    Dr. Shivaprakash Srinivasan, Child Adolescent  and Adult Psychiatrist at SCARF puts the spotlight on the growing trend of cyberbullying, the impact of cyberbullying on adolescent mental health and what parents and educators/teachers can do to prevent cyberbullying and spot signs. The internet since its introduction to the public in the early 1990’s has been changing the world at a really rapid pace. It has been making communication with persons around the world astoundingly easy and also…
  • Inclusive Play for Children with disabilities - Facebook Live Q&A
    Inclusive Play for Children with Developmental Disabilities - Facebook Live Q&A
    Outdoor play is important for all persons including children with disabilities. In our Live Discussion sessions we talk to a play therapist, an Ashoka fellow and parents of teenagers on the autism spectrum. In continuation of our series on Living Better With Disabilities we have with us Meet our Panelists:  Kavitha Krishnamoorthy: Parent of teenager on spectrum, Founder Kilikili and Ashoka Fellow Lucy Bowen: Play Therapist, National Association for Play Therapy   Priya Kannan:…
  • A child in a red tshirt holding a baby doll and stretching a hand out to block. The stretched hand covers the face
    Protecting Children With Disabilities from Sexual Abuse
    Personal safety and sexuality education is critical for children and young individuals with Intellectual disabilities, auditory or visual impairments. But it often does not get the right level of attention from parents and teachers. Enfold Proactive Health Trust, a Bangalore based NGO, has devised a project ‘Suvidha’ to address this gap. Read on. All children, irrespective of the ‘normalcy’ of their neural or physical development, have a right to safety and dignity. Personal safety education…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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