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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
Tue, 04/13/2021 - 19:04

Stories

  • My cancer doesn't define who I am
    "I was originally diagnosed with locally advanced cancer, so that means it's advanced within in the chest. Mine was triple negative. It's the most aggressive form of cancer," she said. Her breast cancer diagnosis came in 2008. She found out about her metastatic breast cancer in January 2011, at 33 years old. "Two and half years after my original diagnosis, I found another lump," she said as she held back tears. "It varies from person to person. But my experience has been a bit of a roller…
  • Joan Lunden talks about her Breast Cancer
    How she shared the information with her kids and why - http://www.today.com/health/joan-lunden-how-i-told-my-kids-i-have-cancer-2D80186889 The choices she made in terms of treatment - http://www.people.com/article/joan-lunden-chemotherapy-cancer
  • Breast cancer drug Perjeta appears to extend patients lives
    According to reports from clinical trials, Roche’s breast cancer drug Perjeta displays “unprecedented” life-extending effects, helping patients live an average of 15.7 months longer than they would on chemotherapy and an older drug. 15.7 months is a significant amount of time for metastatic breast cancer patients, who are, on average, given two to three years to live after their diagnosis. Perjeta, then, has the capacity to increase that time by 50 to 75 percent.  http://www…
  • FDA approves Trulicity a weekly injectable to treat type 2 diabetes
    The U.S. FDA today approved Trulicity (dulaglutide), a once-weekly subcutaneous injection to improve glycemic control (blood sugar levels), along with diet and exercise, in adults with type 2 diabetes. "Type 2 diabetes is a serious chronic condition that causes blood glucose levels to rise higher than normal,” said Mary Parks, M.D., deputy director of the Office of Drug Evaluation II in the FDA’s Center for Drug Evaluation and Research. “Trulicity is a new treatment option, which can be used…
  • It's called motivation and not wanting to be a victim
    Lucille Markie is a key member of the Integrated Neurological Rehabilitation Foundation in Henderson. She is calling on young people with neurological conditions to attend a series of demonstrations to see what help and support is available to them. "There are a lot of younger people like me in the community but they often don't want to attend groups because strokes can be preconceived as an older generation disability." http://www.stuff.co.nz/auckland/10539762/Stroke-won-t-slow-Lucy-down
  • Did you know that womb cancer is the fourth most common cancer in women ?
    My cancer could have been caught earlier if I had been alerted about spotting between periods, heavy periods and watery blood between periods as the main symptoms of womb cancer,” she says. But when she asked NHS Choices whether there should be mention of womb cancer on the menopause pages, she received the following reply: “The problem with adding a warning about womb cancer to the menopause pages is that it may cause unnecessary panic.” And this, says Widschwendter, is the nub of the problem…
  • Artificial sweeteners may promote diabetes, claim scientists
    Artificial sweeteners may contribute to soaring levels of diabetes, according to a controversial study that suggests the additives could exacerbate the problem they are meant to tackle. Researchers in Israel found that artificial sweeteners used in diet drinks and other foods can disrupt healthy microbes that live in the gut, leading to higher blood sugar levels – an early sign of diabetes. But the study has left many experts unconvinced. The findings draw largely on tests of just one sweetener…
  • A woman holding up the pregnancy test kit
    Pre-conception care for a healthy pregnancy
    Planning a pregnancy? Obstetrician and gynaecologist Dr Chandan Dubey tells you what you need to do before you conceive. A woman’s good health prior to and during pregnancy is vital for optimal outcomes for her and the baby. You should consult a general physician or gynaecologist for preconception care and counselling. In the meantime, here’s what you should be aware of:  Lose weight (if you are overweight): Obesity is a serious problem in pregnancy. It increases the…
  • U.S. FDA Approves New Indication for the Use of Enzalutamide for Patients with Metastatic Castration-Resistant Prostate Cancer
    The FDA initially approved XTANDI, an oral, once-daily androgen receptor inhibitor, in August 2012 for use in patients with metastatic CRPC who previously received docetaxel (chemotherapy). The new indication approves XTANDI for use in men with metastatic CRPC who have not received chemotherapy. Metastatic CRPC is defined as a cancer that has spread beyond the prostate gland and has progressed despite treatment to lower testosterone (i.e., with a gonadotropin-releasing hormone (GnRH) therapy or…
  • Heal Your Cancer
    Don’t fight cancer, heal it by attending to body, mind and spirit, says surgical oncologist Dr Vishal Rao. A child developing from an embryo in a mother’s womb is, in reality, a set of rapidly multiplying cells. But they are controlled and regulated. So, we choose to ‘love’ those cells. But when another set of cells multiply rapidly within our body, albeit haphazardly, we call it ‘Cancerous’! These cells are not foreign cells that have made an appearance from outside,…