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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
Tue, 04/13/2021 - 19:04

Stories

  • Havovi who talks about her endometrial cancer seated in a red dress with a red mantel piece behind her
    "How Would I Tell My Children About My Endometrial Cancer Diagnosis"
    Havovi Bharucha, 53 neglected her symptoms and her health while grieving the loss of her husband and being a caregiver to her mother and an aged pet. By the time she sought help, she was diagnosed with Stage 3 Endometrial Cancer. She is a reminder to each one of us to be vigilant about our health. For almost a year, I would get spotting between my periods. I dismissed it thinking it was due to approaching menopause. A year ago, I had lost my husband to liver cancer. Since then I had been…
  • It Is Tough To Ignore The Real Fear Of Relapse
    Anjali Sen, 47 from Mumbai was diagnosed with breast cancer in June 2019. She talks about dealing with the confusion of treatment approaches, the constant fear of relapse, and finding help with online meditation solutions. When were you first diagnosed with breast cancer? I was diagnosed with Invasive ductal carcinoma on my left breast in June 2019. What were the early symptoms? What made you go see a doctor? Early in 2019, I felt a lump in the left breast while changing. During periods,…
  • Social Distancing is Heart Breaking for persons with disability
    Social Distancing is Heartbreaking For Us
    Bangalore based journalist, L Subramani, who lost his vision to retinitis pigmentosa as a teenager, writes how he survived the horrors of being alone in a covid-19 isolation ward and facing death of fellow warrior. Room 209 had a single bed and a side bench. It faced up to a busy road where you could hear the constant rumbling of traffic and the wailing ambulance, far too often for my comfort. The hospital was generally silent, except for the violent coughing fit of a fellow covid-19 patient…
  • Running Has Helped Me Manage Diabetes and Thyroid
    Dr. R. Asha Rajani,65, a retired professor at Madras Veterinary College has fought diabetes together with breast cancer and hypothyroidism. She talks about how she finally learnt to manage diabetes with running, exercise, diet and lifestyle changes. Please tell us a bit about your condition - when were you diagnosed, the early symptoms? I was diagnosed with Diabetes at 36 years of age. My mother had passed away due to a diabetic foot, and both my grandparents from my mom’s side were diabetic.…
  • Chemotherapy Induced Peripheral Neuropathy - Symptoms and Management
    The prevalence of Chemotherapy Induced Peripheral Neuropathy (CIPN) is as high as 68% of all patients and 30% even six months after chemotherapy. It is important to understand the cause and find ways to deal with the pain. Caregivers should not dismiss the pain. Dr. Shital Raval explains CIPN, the symptoms and approaches for management of CIPN.   When the nerves outside of the brain and spinal cord are affected or damaged, it causes a condition called peripheral neuropathy. While…
  • Glucometer and a tray of fruits
    डायबीटीज़ में फल और नट्स (बादाम आदि) के सेवन के बारे में जानें
    क्या मधुमेह से पीड़ित व्यक्ति फल खा सकते हैं? कौन-कौन से फल और कितनी मात्रा में ? क्या वे नट्स (बादाम, अखरोट, आदि) खा सकते हैं? पेश हैं डायटिशियन और डायबीटीज़ एजुकेटर उज्ज्वला बक्शी के इस से सम्बंधित सभी सवालों के जवाब। फल स्वास्थ्य के लिए लाभदायक हैं लेकिन स्वस्थ व्यक्ति को भी अत्यधिक फलों का सेवन नहीं करना चाहिए । एक स्वस्थ, सक्रिय व्यक्ति एक दिन में फल के 4-5 सर्विंग्स, (यानि कि 500 ग्राम फल) खा सकता है । स्वस्थ व्यक्ति में भी अत्यधिक फलों के सेवन से ट्राइग्लिसराइड्स (रक्त लिपिड प्रोफाइल…
  • Diabetes is a Tricky Disease with A Massive Emotional Burden
    Shloka Ramachandran, diagnosed with Type 1 diabetes at 7 years of age, delves into important learnings on how to take care of your physical and emotional health and not fall into self-damaging patterns. In my experience, when most people think diabetes, they think about sugar. Unless they have diabetes or know a diabetic, they do not think beyond that. I don’t blame them for it! Diabetes is often the butt of many an unfunny joke about something being sweet enough to ‘give you diabetes’ or the…
  • Pushpa Garde who controlled her diabetes with medication, discipline and lifestyle changes
    मैंने डायबीटीज़ का सामना जीवनशैली में बदलाव लाकर किया
    दिल्ली में स्थित पुष्पा गर्दे 75 साल की हैं और उन्होंने पिछले 25 सालों से अपने डायबीटीज़ को अच्छी तरह से नियंत्रित किया है। उनके द्वारा किए गए आहार और जीवनशैली में बदलाव के बारे में जानें । लगभग 30 साल पहले मेरे स्तन पर एक फोड़ा हुआ था जो ठीक नहीं हो रहा था । डर के मारे, मैं एक कैंसर विशेषज्ञ के पास गई । मेरा रक्त परीक्षण किया गया और फास्टिंग शुगर लेवल 196 निकला । मुझे खाने में चीनी कम करने को कहा गया। तो पहली कैजुअल्टी थी मेरी मीठी चाय। मैंने अपनी चाय में चीनी लेना बंद कर दिया। महाभारत में,…
  • Diabetic with a glucometer in hand
    "तनाव और उच्च रक्तचाप डायबीटीज़ के सबसे बड़े दुश्मन हैं"
    अतुल गर्ग*, 31 पिछले 8 वर्षों से टाइप 1 डायबीटीज़  से जूझ रहे हैं और इस अनुभव के आधार पर वे समझ गए हैं कि डायबिटीज़ को नियंत्रण में कर रखने के लिए एक अनुशासित जीवन कितना महत्वपूर्ण है । कृपया हमें अपनी स्थिति के बारे में थोड़ा बताएं। मैं एक इंसुलिन पर निर्भर टाइप 1 डायबिटिक हूं। 23 साल की उम्र में मेरा टाइप 1 मधुमेह का निदान हुआ । शुरुआती लक्षण क्या थे? अधिक प्यास लगना, बार-बार पेशाब आना, वजन बेवजह कम होना, ज्यादा भूख लगना, त्वचा का रंग काला पड़ना, थकान महसूस करना, आदि। क्या आपके परिवार…
  • Healthy Idli recipe for diabetes
    Mixed Dal Chutney and Vegetable Idli: Healthy Recipe
    Kajal Hansda, Senior Diabetes Educator at Diabetes Awareness and You (DAY) shares a recipe for a healthier idli option. Useful for persons with diabetes. Ingredients for Idli: 1cup soaked chana dal (split cow peas) 1 cup whole moong dal 1/4th cup grated carrot 1/4th cup capsicum(cut into small pieces) 1/4th cup green peas 3pcs green chillies ½ tsp lemon juice ¾ tsp fruit salt 1 gm oil for greasing Salt to taste अब हिंदी में पढ़े: मिक्स्ड दाल चटनी और वेजिटेबल इडली: पौष्टिक रेसिपी…