Caregiver Training Video - Touch Therapy

मुंबई की 76 वर्षीय राशने दुबाश को दो दशकों से अधिक समय से रूमेटॉइड आर्थ्राइटिस है, और वे इस लेख में इस के साथ अपनी यात्रा साझा करती हैं। वे अपने लक्षणों के बारे में बात करती हैं और बताती हैं कि वे अपने स्वास्थ्य का प्रबंधन कैसे करती हैं और उन्होंने इस दौरान क्या सीखा। राशने दुबाश एक ऊर्जावान जीवंत व्यक्ति हैं जो नहीं चाहती हैं कि कोई भी बीमारी उनकी जीवनशैली पर अंकुश लगाए। वे सक्रिय रहती हैं, सेवानिवृत्त होने से इनकार करती हैं और जिंदगी से प्यार करती हैं। वे एक स्कूल में प्रशासक के रूप…

Rashne Dubash, 76 year old from Mumbai shares her journey of living with Rheumatoid Arthritis for over two decades. She talks about her symptoms, how she manages her health and the lessons learnt. Rashne Dubash is an energetic vibrant person who does not want any disease to curb her lifestyle. She continues to be active, refuses to retire and loves her life. She used to work as an administrator for a school and now works for a design firm. Please tell us a bit about your condition? I have…

Despite a family history of Ankylosing Spondylitis, it took 2 years for Amit Choudhari to get a diagnosis of Ankylosing Spondylitis (AS). Luckily despite experiencing pain and attacks, the treatment and medication prevented joint fusions. He talks of how AS affects his social, employment and lifestyle choices and how faith and family support help him cope with the condition.  Please tell us a bit about your condition I have been suffering from Ankylosing Spondylitis (HLA B-27 Positive.)…

Ramesh B. Choudhari, 64 from Nagpur was not only afflicted with Ankylosing Spondylitis from a young age, but was diagnosed very late which led to fusion of his joints and consequent surgeries. But that did not stop him from working, and leading a normal life to the best of his abilities. Please tell us a bit about your condition I have been suffering from Ankylosing Spondylitis (AS) since 1972 ( my age was 14 yrs then) , but I was only correctly diagnosed in as late as 1997. I have had multiple…

Bhushan Ghate, 45 of Nagpur has been suffering from Ankylosing spondylitis, an inflammatory disease that can cause bones in the spine to fuse, from the early age of 12. Delayed diagnosis worsened the condition for which he is completely home bound now. He runs patient support groups and helps others with a similar condition in his own way. Challenges in Diagnosis I am a good example of delayed diagnosis. When I first felt the symptoms of Ankylosing Spondylitis, it was in 1988-89, when I was…

Prachee Bhosle, 42, who was diagnosed with ankylosing spondylitis and fibromyalgia, two painful rheumatic disorders, shelved her career plans and chose to become a patient leader to raise awareness and advocate for better care and support. She is currently President of Ankylosing Spondylitis Welfare Society.  Please tell us a little bit about yourself, your background? I am a parent to 2 kids, a 14-year-old girl and a 10-year-old boy. Both my kids are homeschooled by me since 2017. After…

Jolene Dias, who was diagnosed with Limb Girdle Muscular Dystrophy, persevered her passion for music against adversities. From a celebrity singer, she began to teach music to children, including those with special needs, and challenge preconceived notions about people on wheelchairs. I was an extremely active child, good in sports and studies. I used to love to sing, dance, and perform. In school, I was at the center of all music shows, singing classes, and choir practices. I have been…

काजल* सक्रिय  रहती थीं और अपनी जीवनशैली को लेकर सावधान थीं। जब उनका बेवजह  वजन कम होने लगा और घुटने में दर्द भी होने लगा तो उन्होंने कई टेस्ट करवाए और विशेषज्ञों से मिलीं। प्राप्त सलाह और समाधानों से संतुष्ट न होने पर, काजल ने खुद समाधान खोजने के लिए विभिन्न पूरक उपचारों को सक्रिय रूप से खोजा और कुछ आश्चर्यजनक निष्कर्ष निकाले। मैं हमेशा से ही पतली और सक्रिय रही हूं। अपने माता-पिता की स्वास्थ्य समस्याओं को पहचानते हुए, जब मेरी उम्र तीस साल हुई तो मैंने जीवन शैली को अधिक स्वस्थ  …

मुंबई की 72 वर्षीय गीता कांतवाला को मेनिस्कस टीयर के कारण आर्थोस्कोपी के बाद में बाएं घुटने का रिप्लेसमेंट हुआ।  वे अपनी सर्जरी की विफलता और सफलताओं और रिकवरी और रिहैबिलिटेशन (पुनर्प्राप्ति और पुनर्वास प्रक्रिया) की बात करती हैं। और दूसरे डॉक्टर से राय लेने की जरूरत है, इस पर जोर देती हैं। मुझे अप्रैल 2016 में अपने बाएं घुटने में मेनिस्कस टीयर का निदान मिला। एक दिन मेरा घुटना लॉक हो गया (एक ही पोजीशन में जकड़ गया) और मैंने जब चलने की कोशिश की तो घुटना मेरा बोझ नहीं ले पाया और मैं गिर…

Rheumatic conditions like Lupus, Anklosing Spondylitis, Scleroderma and Sjogren's Syndrome affect people in a myriad ways. These often create body image issues and impact self esteem. We will speak with patient leaders Kirtida Oza, Neetu Wadhwa, Vachasamrita, Ami Shah and Mental health therapist Arouba Kabir on the common issues faced by persons with Rheumatic Conditions and how they can reclaim their self esteem. Kirtida is founder Sjogren's India Neetu Wadhwa is co-founder Scleroderma India…