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  • Cancer

    This Community will address questions and discussions on all forms of Cancer. We will support each other - patients and caregivers in their journey  

  • Two blind women conducting tactile breast examination
    Blind Women Can Lead The Way In Early Breast Cancer Detection
    Discovering Hands initiative in India is a project that empowers visually challenged women to find a foothold in the medical world as Medical Tactile Examiners in the area of breast cancer by examining women for early detection and hence a reduction in the mortality rate. Moyna Sen speaks to three organizations NAB India Centre for Blind Women, New Delhi, Enable India, and CyteCare Hospitals as well as the Medical Tactile Examiners to understand how they all came together to make this…
  • Navigating Treatment Options for Acute Lymphoblastic Leukemia - Webinar Video
    Listen to Dr. Nataraj KS and Dr. Kishore Kumar explain treatment options for Adult Acute Lymphoplastic Leukemia (ALL). Dr. Nataraj KS is Senior Consultant, Hematology, Hemato-Oncology and Bone Marrow Transplantation, Sri Shankara Cancer Hospital, Bengaluru Dr. Kishore Kumar is Senior Consultant Hematogist, Hemato-oncologist and BMT Physician, MIOT Hospital, Chennai.  Dr. Nataraj and Dr. Kishore Kumar answered the following questions in detail.  - What is Leukemia and Acute…
  • एएलके (ALK) लंग कैंसर के मरीज साथ मिलकर अपनी स्थिति में सुधार के लिए काम कर रहे हैं
    शीबा सुरेश को जैसे ही स्टेज IV एएलके (ALK) म्यूटेशन लंग कैंसर का निदान मिला, उनकी लक्षित चिकित्सा को तुरंत शुरू किया गया। इस लेख में वे बताती हैं कि उनके लिए दवाएं असरदार रहीं और वे खुद को भाग्यशाली मानती हैं कि वे अधिक समय तक जीवित रह सकेंगी। कोच्चि में दिसंबर में मौसम सुहावना होता है। बागवानी के लिए यह सही समय है। मैंने उत्साह से अपने घर के लिए एडेनियम, पेटुनिया, डायनथस और गुलाब के कुछ फूल वाले पौधे खरीदे और कुछ दिनों के लिए उन्हें लगाने और काटने में व्यस्त हो गई। मैंने अपने आप पर ज्यादा जोर…
  • Love and Support Are As Good as Medicines for Cancer
    Mrs Hsu*, age 47 has been a caregiver for 12 years to her husband Mr. Hsu, diagnosed with rare neuroendocrine cancer. Read how they both took control of his cancer journey and became a firm believer that with good knowledge and support, we can help a patient survive more than 4-6 months. I am caregiver to my husband Henry*. Some 12 years ago, he was diagnosed with a rare cancer, a pancreatic gastrinoma neuroendocrine tumour (NET).  He was 50 at that time. His symptoms started with severe…
  • A Journey Of Hope: New Directions in Cancer Care
    PatientsEngage supports a Journey of Hope, a seminar highlighting new directions in Cancer Care. Find out how new therapy areas like nuclear medicine therapy and targeted radiotherapy are useful for treating prostate, neuroendocrine and potentially other cancers. Also learn about the role of patient groups in supporting patient and caregiver journeys. Join us on Sat 5 Nov at Academia Bldg, Singapore General Hospital Campus, or via YouTube  Register here to get the links: https://…
  • After Breast Cancer: Navigating Special Needs Parenting and Financial Independence
    Breast Cancer Survivor of more than 25 years, Farida Rizwan talks about her journey of living beyond breast cancer. How she strove for financial independence and navigated the challenges of parenting of two young children including one with Cerebral Palsy and Intellectual Disability and what kept her going. "I wanted Quantity of Life rather than Quality. I had to be there for my children" Farida Rizwan is a senior curriculum developer for a Learning app, Founder & Administrator of a…
  • Colon Cancer Survivor Ramendra with family
    Positivity And Relationships Make Each Day Worth Living
    Ramendra Kumar has fought colon cancer with all its adversities, and continues to do so. His story, together with his daughter’s version, puts together the rollercoaster ride that he and family went through the last few months. He shares what keeps him going. Read the first part of his cancer journey here. Could you take us through the past few months which have been very difficult for you? I am a cancer warrior having battled 4 septic shocks, 4 major surgeries, 4 rounds of radiation, 4…
  • Stock pic of a magnifying glass over a dictionary focussing on cancer and the patientsengage logo and the purple ribbon for cancer
    Cancer Terms Explained
    When a patient is diagnosed with cancer, they and their family caregivers need to suddenly learn a new vocabulary of terms. It can be overwhelming to look at various reports and make sense of what it means. PatientsEngage has put together a glossary of various cancer related terms. Bookmark this for easy reference. If you don't find the term you are looking for leave a comment below or send us a note through contact us and we will update the content.       …
  • I Am Scared To Go Down the Path of Illness
    Author and writer Usha Jesudasan illustrates, with a parable of Chicken Little who believes the world is coming to an end, how illness related anxiety can get difficult. Here she offers some tried and tested tips that have worked for her to come out of this way of thinking. A visiting friend sneezed and coughed around me.  No, he wasn’t wearing a mask.  I was a bit cross.  I had kept myself safe through the two Covid waves and strictly followed safety measures. I live alone, and…
  • Webinar: Staying Strong With Stage 4 Lung Cancer
    Lung Cancer is often diagnosed at an advanced stage. This has a significant impact on the patient and their family. ALK+ Lung Cancer Survivor Shiba Suresh from Kochi, Kerala joins us on 14th August 3pm IST to talk about her journey of diagnosis and navigating metastatic lung cancer, the challenges she faces and what helps her stay strong. Co-moderated by Urvi Sabnis, cancer survivor and caregiver and Aparna Mittal, founder PatientsEngage On Zoom Webinar ID: 814 7175 5331 Passcode: 458173 Or you…
Hello! My name is Sarayu Narayan, and I am a student of Master's of Applied Psychology (Clinical and Counselling Practice) at the Tata Institute of Social Sciences, Mumbai. As part of my curriculum, I am conducting a study on Resilience, Body image…
Losing a mother is the deepest sorrows a heart can know. Nothing on this earth can ever replace the love and care of a parent. It was that fateful day 8th Nov,2020 that within minutes our lives were shattered and everything changed forever. Mom was…
  82 year old elderly woman diagnosed with advanced lung cancer. Lives with elderly husband in Bangalore. Need for good nurse and home set up for palliative care. Looking for options other than Portea.  Resources suggested by Pallium India…
Background: Although advancements in systemic therapy have improved the outlook for pancreatic adenocarcinoma, it is not known if patients get access to these therapies. We aimed to examine the patterns and factors associated with access to…
Here are a few things wrong with a mainstream media article like this  https://health.economictimes.indiatimes.com/news/diagnostics/can-neem-h… It confuses prevention with cure It mentions various studies with no link to any study Is neem a…
What can the doctor, a friend or a family member say to help the cancer patient feel better? What would you like to hear?    
This blog on the cancer research UK site addresses the concern around sugar and cancer.  Does sugar cause cancer? Does sugar feed cancer cells, making them grow more aggressively? The origins of this linkage and the role of a scientist called…
An extremely heart warming story on two childhood cancer survivors falling in love and getting married https://www.nytimes.com/2018/09/07/fashion/weddings/love-not-lost-two-c…    
This study compared the outcome of low-dose rate brachytherapy (LDR-BT) and image-guided intensity-modulated radiotherapy (IG-IMRT) for localized prostate cancer of different severities. With/ without External Beam RadioTherapy.  Five year…
While this is not definitive and it is a small sample size, its still a strong indicator. Its also worrying that those who chose alternatives tended to be younger women with more education and more money  https://www.nbcnews.com/health/health-…

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