The theme for World Hemophilia Day this year is “Access for All: Partnership. Policy. Progress. Engaging your government, integrating inherited bleeding disorders into national policy”. By raising awareness and bringing hemophilia and other…
Veena Sheel Bhatnagar, 80, a former lecturer of Economics, has been a non-stop caregiver for over five decades to her family members, the last being her late husband Vijay Sheel Bhatnagar who had Parkinson’s Disease. Here she recounts her long…
Dr Kavery Nambisan, eminent surgeon and novelist, in her latest book ‘A Luxury Called Health’ writes about her compelling medical experiences in rural Indian communities and talks of the key tenets of doctor-patient relationship. She dwells on…
Rekha Khanduri, 73 from Mumbai has diabetes for a while and lost her eyesight due to diabetic retinopathy, a diabetes related complication. She talks about how she has since learnt to live with such an irreparable loss.
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The UN Convention on the Rights of Persons with Disabilities (UN CRPD) calls for “full and effective participation and inclusion in society”. In line with this, the campaign for World Down Syndrome Day 2022 focusses on understanding what "Inclusion…
Despite a family history of Ankylosing Spondylitis, it took 2 years for Amit Choudhari to get a diagnosis of Ankylosing Spondylitis (AS). Luckily despite experiencing pain and attacks, the treatment and medication prevented joint fusions. He talks…
Ramesh B. Choudhari, 64 from Nagpur was not only afflicted with Ankylosing Spondylitis from a young age, but was diagnosed very late which led to fusion of his joints and consequent surgeries. But that did not stop him from working, and leading a…
Mukta Bhonsule, 55 was diagnosed with stage 3 breast cancer 9 years ago in Mumbai. She shares her journey with breast cancer, the survivorship issues she deals with and the challenges of balancing this as a caregiver of a COPD patient.
I was…
Prof. (Dr.) Shilpi Bhattacharya, diagnosed in the prime of her life with rare disease GNE Myopathy that weakens skeletal muscles, fought hopelessness and decided to take the illness by the horns to make a difference to herself and the rare disease…
