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Multiple Sclerosis or MS is a disease that can easily lead to feelings of isolation. Typically, at some point, it leads to significant physical disability and forces people to leave paid employment. It is particularly difficult as MS hits patients when they are young, just starting a family or developing their career.
The spouse or other family member has to take on the responsibilities of caring for the patient, children and supporting the family financially. As the disease progresses, the responsibilities increase.
To give your best to the patient, it is important to look after yourself as well. This can be hard, but try to incorporate these into your life:
• Speak to your employer about flexi hours or working from home
• Help the patient stay active, engaged and positive by having him/her do some volunteer jobs (as long as he/she is able to)
• Join a support group for caregivers
• Plan some time off for yourself while someone else takes over your caregiving responsibilities
• Exercise
• Sleep
• Eat healthy
Remember, MS affects quality of life but physical disability sets in over a period of time, so the family can help the patient stay active and lead a regular life for as long as possible.