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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
Tue, 04/13/2021 - 19:04

Stories

  • Hypoglycaemia: The highs and the lows
    Jimmy Ong from Singapore relates his personal experiences of being a patient with Type 1 Diabetes and suffering frequent bouts of hypoglycaemia to learn diabetes management the hard way Early Diagnosis  I was diagnosed as a Type 1 diabetic in June 1979 at the age of 28 when I also happened to be overweight. At the time of diagnosis, I had very high glucose in my blood, a count of about 23.  Symptoms  I was urinating abnormally and drinking liquid excessively. I used to wake up a…
  • Me and my epilepsy
    Do not let epilepsy scare your dreams away. This spunky advice comes from 25-year-old Ishira Bubber as she recounts her struggle with epilepsy, unpredictable seizures, loss of childhood and dependence on dozen tablets. Have you ever wondered what it would feel like, being alive, but not living for a few seconds? Trying to remember what happened, but just cannot. How many of you have experienced this? I have. Not once, not twice, but many times; sometimes 100 times a day. …
  • To tell or not to tell - the caregiver's dilemma
    Breaking bad news to patients can be daunting and difficult, especially for caregivers.  Maya Ramachandran narrates her experience when she and her husband were caught in such a catch-22 situation.   My husband’s close relative was experiencing sudden onset of bleeding after almost 25 years post-menopause, at the age of 75! Fearing that it could be cancer, she had shied away from meeting doctors. After a whole year of having struggled with this almost alone, she …
  • My Love Story With the Creeping Crab
    By Geetha Paniker, a survivor of triple negative cancer with double mastectomy. A  believer of being positive against all odds who pens, all that the mind can reason with the heart. A teacher, turned home maker, she loves reading, writing and handicrafts.  As I look back on my journey of life, I realise that in May 2014, I celebrate my cancer anniversary (Cancerversary). It marks my survival despite the pain, pokes, discomforts, transformations and transmutations.…
  • Asian children are more prone to developing kidney diseases
    Today is World Kidney Day and the theme this year is ‘Kidney Disease & Children – Act Early to Prevent it’. We spoke to Dr Pankaj Deshpande, pediatric nephrologist, to apprise us about kidney disorders in children and how they can be alleviated. What are some of the common kidney diseases/disorders in children? How does it affect them? There are many kidney illnesses in children and that actually evokes surprise in a lot of people as they are quite unaware that kidney…
  • A wish for no one to endure unnecessary pain
    Harmala Gupta traversed the journey from being a cancer survivor to founding CanSupport, a home based Palliative Care service in Delhi and NCR. CanSupport also runs out-patient clinics. Harmala Gupta shares her views with PatientsEngage on Palliative Care. PE: According to the ACHEON study ("The non-interventional, anonymous, non-biased ACHEON survey was the first and largest cross sectional evaluation of physicians’ and patients’ perspectives on cancer and non-cancer pain management…
  • The case for Palliative Care
    An awareness film made by Indian Association of Palliative Care based on excerpts from over 200 interviews conducted with working and retired nurses across India  
  • How diabetes affects your sex life
    Many people with diabetes encounter difficulties with sex but are hesitant to address them. Some of you have asked us anonymously. Diabetologist Dr Rajiv Kovil from Mumbai offers some information and advice. Sexual problems (sexual dysfunction) are common among people with diabetes. Both men and women with diabetes experience sexual difficulties as a result of complications from the disease. How common is the problem? Although no official statistics are available for the extent…
  • Bone Marrow Donation is as simple as a blood donation
    Jane Prior of the Bone Marrow Donor Programme, Singapore takes a closer look at the myths and misconceptions surrounding the impact bone marrow donation may have on your own health.  First, we need to understand why we need to donate blood stem cells. Certain diseases destroy bone marrows or cause it to not function normally. As bone marrow is crucial in the production of blood, this may lead to the endangerment of one’s life if the bone marrow is not working properly.  Myth 1:…
  • Only 2 out of 10 children survive Childhood Cancer in India
    Cuddles Foundation is one of the few NGOs in India that provides holistic nutritional support to impoverished children so that they can survive the trauma of cancer. In an interview founder-member Purnota Dutta Bahl stresses the need to fight malnutrition to save lives.  How important is nutrition in the fight against childhood cancer? 50,000 children are diagnosed with cancer every year in India. Only 22% of these even make it to the hospital for treatment. 4 out of 10 children…