Skip to main content
Submitted by Mariyam Raza Haider on 20 January 2018
Close up of the author Mariyam Raza Haider, caregiver of her father with oral cancer

The most important factor in medical emergencies is to not panic, think calmly and act quickly and effectively. Mariyam Raza Haider, 26, recounts an emergency due to side effects of chemotherapy for her father's treatment of oral cancer and the lessons she learnt from it. This concludes the two-part series.

One of the biggest concerns when taking care of a cancer patient on chemotherapy is the bout of side effects. The most common side effects of any form of chemotherapy are — nausea, vomiting, diarrhoea, constipation, internal bleeding, and severe headaches. Dad is being administered targeted chemotherapy. Since this is a palliative form of therapy, he is given weekly routines of it and assessed after every eight doses of the chemotherapy cycles.

Weekly rounds of chemotherapy mean increased concern of side effects. And that concern became a reality on the third day after his first chemo, when he experienced one bout of diarrhoea. Around 11 am, he complained of having loose motion, and since it just happened once, I chose to take it lightly. First mistake.

The rest of the day went well. It was only after 11 pm that night, he started having diarrhoea again. Mum woke me up with a start saying that Dad’s feeling unwell, and complaining of stomach gurgles. I went to him and he indicated that he’d been to the washroom twice and was having an empty stomach feeling. I immediately checked his discharge summary and called up the emergency helpline of the hospital to discuss with the on call doctor. The doctor assured me it was nothing and giving him ample fluids would resolve the issue. I didn’t ask what medicine should he be given in case the diarrhoea continues. Second mistake. Dad took ORS fluids and went back to bed.

It was at 1 am that Mum woke me up again saying that Dad’s been to the toilet again. That’s when my nerves kicked in. The first thought that came to my worst case scenario building mind was he might need admission in the hospital, and we might have to rush him there. Dad was getting very worried and started feeling jittery. Mum and my sister started searching for some drug in the medicine cabinet and we found two anti-diarrhoea ones.

We called up the on call doctor and he advised against giving those two drugs, suggesting another tablet to be given to him. We didn’t have it and it was my brother and Dad’s brother who then went to the nearest pharmacy to purchase it. By this time Dad had slept. We got the medicine, gave it to Dad, and hoped it would be alright. It did eventually. Dad slept through the night, peacefully.

What did I learn out of this situation?

  1. Always ask the doctor for emergency medicines for all the side effects, while the discharge summary is being prepared.
  2. Do not take any symptom lightly. Keep close observation of any sign out of the ordinary.
  3. Do not build worst case scenarios in mind. Rather look out for the available positives in that situation. In Dad’s case, we had an excellent on call doctor; we had a 24x7 hour pharmacy available.
  4. Keep your cool. Dad and Mum were visibly worried and adding to their worry by panicking could have worsened the situation.
  5. Press the autopilot button. Do not get embroiled into emotions.

How to manage the side effects of chemotherapy

As Dad looked at me with concerned eyes, he indicated that he was afraid to sleep as he might have to wake up again because of stomach issues. At that point, Mum and I tried to reassure him by toning down the intensity of the situation and saying that whatever it is, we can handle it. I got massive reassurance by having my siblings around at that time.

Medical emergencies cause panic and nervousness. Managing that feeling and not letting it obstruct your mind is the biggest positive aspect one can learn. We did. And we hope we’ll be able to do so again.

Also read: Tips on de-stressing during chemotherapy

(This article is part of the author’s series on finding positivity and decoding the ‘be positive’ attitude as her father fights through aggressive oral cancer. Currently she is taking care of him full time at home. You can read her other posts on http://mariyamrazahaider.com. You can also follow her on twitter @MariyamRaza for more.)

Community
Condition
Changed
Sun, 01/21/2018 - 07:41

Stories

  • Signs and Symptoms of Oral Cancer
    If you have any of the following, see your dentist: Swelling, ulcer or any type of growth in the oral cavity or around the mouth White or red patches on lips, gum, tongue or mouth lining A lump that can be felt inside the mouth or on the neck Pain or difficulty chewing, swallowing or speaking Continued hoarseness of voice Numbness or pain in any area of the mouth that doesn’t go away Swelling of the upper or lower jaw Sudden loosening of teeth Difficulty in wearing dentures Bleeding in any…
  • Diagnosis and Tests for Oral Cancer
    The doctor may recommend some of the following tests: Colposcopy and optical diagnostic systems: The colposcope is an instrument with a magnifying lens that allows the doctor to take a close look at the affected part of the mouth. Acetic acid solution and iodine solution (Lugol's or Schiller's) are applied to the surface to improve visualisation of abnormal areas. Toluidine blue (TB) and lugols iodine staining: is a simple and inexpensive diagnostic tool to…
  • Risk factors for Oral Cancer
    The risk factors include the following: Habitual smoking, taking snuff and chewing of tobacco,gutka, pan or areca nut Heavy drinking of alcohol Human papilloma virus (HPV) Epstein-Barr virus Lichen planus  that causes white lines and spots in the mouth. On immuno suppression drugs Exposure to radiation at a young age Previous personal history of cancer elsewhere in the body Family history of cancer Certain genetic traits and syndromes (such as Fanconi anemia and Dsykeratosis congenita)…
  • Prevention of Oral Cancer
    Can oral cancer be prevented Go for regular screening. People without risk factors should get screened every 6 months. Those with risk factors should get screened monthly. If oral cancer is detected early, the cure rate is more than 80%. Your dentist will examine your mouth during a routine visit, anyway, but if you have any concern, do mention it. Do not use tobacco in any form (both smoking and chewing tobacco can cause cancer) Do not chew betel nut or pan Do not drink alcohol in excess Stay…
  • Oral Cancer
    Oral cancer refers to cancers of the head and neck. It includes cancer of the lips, tongue, cheeks, gums, salivary glands, floor of the mouth, hard and soft palate, sinuses and pharynx. Brain cancer falls in a different category. The leading causes of oral cancer are smoking and drinking too much alcohol. Ninety per cent of oral cancers are squamous cell carcinoma of oral mucosal origin. Squamous cells line the lips and the oral cavity. The oral cavity is bounded above and laterally by the…
  • Image text says Superfoods
    5 budget superfoods
    Nutritious foods that give you the most bang for your buck. By Dietitian and Diabetes educator Ujjwala Baxi When we hear ‘superfoods’, we think quinoa, blueberries, salmon, chia seeds etc thanks to clever marketing and hype. These are not only expensive, but can be hard to get hold of, especially in India. The good news is that there are ‘superfoods’ that are readily available and affordable, but are often ignored. They pack as much punch as the much-touted superfoods but are overlooked as…
  • Stock pic of a cancer patient with no hair looking out of a window for this article on managing side-effects of chemotherapy
    Managing The Side-effects Of Chemotherapy
    Chemotherapy saves lives but it is dreaded for its side effects. Dr Shital Raval tells you how to get relief on common side effects like mouth sores, nausea, dry skin, vomiting, diarrhea, hair loss and more.  Here, how to manage some of the common side effects: Mouth sores:  Apply gylcerine ointment to the sores  Avoid sour or citrusy foods to help sores heal  Eat cold foods like ice-cream or yoghurt with honey to soothe the discomfort Dry mouth:  Suck on ice chips,…
  • Price of delay in cancer care
    The delay in diagnosis changes the prognosis, treatment approach, and the cost associated with it, dramatically By Jame Abraham, M.D, FACP, Cleveland Clinic Arathi is a 47-year-old, highly successful systems engineer from Mumbai. About six months ago, she noticed some discomfort in her left breast. When she raised her arm above her head to comb her hair, she noticed some skin changes on the left breast. But she chose to ignore that, too. When she developed a constant nagging pain in her…
  • Tobacco control is cancer control
    Says Dr V Shanta, cancer specialist and the Chairperson of Adyar Cancer Institute, Chennai. Lung cancer, which is related to smoking, is today the top cancer in the country. Within the year, 15.5% of 13 to 15-year-olds are going to start smoking. Don’t let your child be one of them. Plus, how smoking harms non-smokers, too.  1. How grave is the health problem posed by tobacco use in India? How much of it relates to smoking cigarettes, beedis and how much is it due to consumption of gutka,…
  • Stop Your Child Smoking
    Why your child is at risk and what to say to him or her. By Dr Shital Raval Patel. When you think of a smoker, you don’t think of a 10-year-old. But 67% of smokers in India start the tobacco habit between the ages of 9 and 15. According to the Global Youth Tobacco Survey (2006), more than one third of students aged 13 to 15 years (36.8%) reported initiating tobacco use before the age of 10 (Sinha et al., 2008). This could be cigarettes, bidis (which have three times the amount of nicotine and…