Skip to main content
Submitted by Mariyam Raza Haider on 20 January 2018
Close up of the author Mariyam Raza Haider, caregiver of her father with oral cancer

The most important factor in medical emergencies is to not panic, think calmly and act quickly and effectively. Mariyam Raza Haider, 26, recounts an emergency due to side effects of chemotherapy for her father's treatment of oral cancer and the lessons she learnt from it. This concludes the two-part series.

One of the biggest concerns when taking care of a cancer patient on chemotherapy is the bout of side effects. The most common side effects of any form of chemotherapy are — nausea, vomiting, diarrhoea, constipation, internal bleeding, and severe headaches. Dad is being administered targeted chemotherapy. Since this is a palliative form of therapy, he is given weekly routines of it and assessed after every eight doses of the chemotherapy cycles.

Weekly rounds of chemotherapy mean increased concern of side effects. And that concern became a reality on the third day after his first chemo, when he experienced one bout of diarrhoea. Around 11 am, he complained of having loose motion, and since it just happened once, I chose to take it lightly. First mistake.

The rest of the day went well. It was only after 11 pm that night, he started having diarrhoea again. Mum woke me up with a start saying that Dad’s feeling unwell, and complaining of stomach gurgles. I went to him and he indicated that he’d been to the washroom twice and was having an empty stomach feeling. I immediately checked his discharge summary and called up the emergency helpline of the hospital to discuss with the on call doctor. The doctor assured me it was nothing and giving him ample fluids would resolve the issue. I didn’t ask what medicine should he be given in case the diarrhoea continues. Second mistake. Dad took ORS fluids and went back to bed.

It was at 1 am that Mum woke me up again saying that Dad’s been to the toilet again. That’s when my nerves kicked in. The first thought that came to my worst case scenario building mind was he might need admission in the hospital, and we might have to rush him there. Dad was getting very worried and started feeling jittery. Mum and my sister started searching for some drug in the medicine cabinet and we found two anti-diarrhoea ones.

We called up the on call doctor and he advised against giving those two drugs, suggesting another tablet to be given to him. We didn’t have it and it was my brother and Dad’s brother who then went to the nearest pharmacy to purchase it. By this time Dad had slept. We got the medicine, gave it to Dad, and hoped it would be alright. It did eventually. Dad slept through the night, peacefully.

What did I learn out of this situation?

  1. Always ask the doctor for emergency medicines for all the side effects, while the discharge summary is being prepared.
  2. Do not take any symptom lightly. Keep close observation of any sign out of the ordinary.
  3. Do not build worst case scenarios in mind. Rather look out for the available positives in that situation. In Dad’s case, we had an excellent on call doctor; we had a 24x7 hour pharmacy available.
  4. Keep your cool. Dad and Mum were visibly worried and adding to their worry by panicking could have worsened the situation.
  5. Press the autopilot button. Do not get embroiled into emotions.

How to manage the side effects of chemotherapy

As Dad looked at me with concerned eyes, he indicated that he was afraid to sleep as he might have to wake up again because of stomach issues. At that point, Mum and I tried to reassure him by toning down the intensity of the situation and saying that whatever it is, we can handle it. I got massive reassurance by having my siblings around at that time.

Medical emergencies cause panic and nervousness. Managing that feeling and not letting it obstruct your mind is the biggest positive aspect one can learn. We did. And we hope we’ll be able to do so again.

Also read: Tips on de-stressing during chemotherapy

(This article is part of the author’s series on finding positivity and decoding the ‘be positive’ attitude as her father fights through aggressive oral cancer. Currently she is taking care of him full time at home. You can read her other posts on http://mariyamrazahaider.com. You can also follow her on twitter @MariyamRaza for more.)

Community
Condition
Changed
Sun, 01/21/2018 - 07:41

Stories

  • Image of Pavithra, a brain tumor survivor in a green dress with her husband in black and son
    A Brain Tumor Need Not be Life-Threatening
    Pavithra Sakthivel, who had severe headaches and a seizure, was diagnosed with Grade 3 malignant brain tumor. But she recovered quickly in six months. Find out about the treatment and surgical options that worked for her.    I am a 36 year old teacher and an Education Specialist. I was leading a happy, healthy life with my husband and cute 6 year old son till January 2017. Trouble began when I started getting headaches. Initially, they were appeared routine, but grew in frequency and…
  • Image: Stock photo of colon over white t-shirt and dark jeans set against a pink background
    Why You Should Know About Lynch Syndrome
    Colorectal cancer is the 4th most common cause of deaths related to cancer worldwide. Lynch syndrome or HNPCC is one of most common genetic causes of Colon cancer. Here are a few questions to better understand Lynch syndrome and how we can screen for it. 1. What is the Lynch syndrome? Which genes are involved? Lynch Syndrome is also known as hereditary non-polyposis colorectal cancer or HNPCC. It has a genetic disposition, hence the term hereditary and is known to be associated or  the…
  • Image indicates a caregiver holding the hand of an older person
    Life Lesson I Learnt Watching my Papa Die
    We prepare ourselves for everything, but most of us are in denial about death. Aparna Das shares the one final lesson her father taught her during his last few days as he breathed his last. My father was diagnosed with Pancreatic Cancer in October 2017. Of course, he and all of us did everything in our capacity to save him. But he passed away on the 20th of April 2018. The three days leading to his death were probably the most painful that our family had faced collectively. But I have a…
  • Mariyam with her father in a nice outside setting
    It Brought Perspective To My Father’s Illness and Its Impact On My Life
    Talking and writing about health related experiences is still not common in Asia.  This International Women’s Day, we reach out to three dynamic women who share their experience as patient or caregiver to understand their motivations. In the last part of the series, we feature Mariyam Raza Haider.   1)    Why did you choose to blog? My strongest reason for blogging was to bring perspective to my father’s illness and its impact on my life. As I began writing about…
  • A child with cancer with his parents
    Seeing Our Child Suffer Is Never Easy
    Javed Khan and his wife describe their 14 year old son, Tavish’s journey with cancer - from diagnosis to treatment and the support they received from Accesslife. 5 months ago, Tavish started complaining of knee pain in his left leg. He was an avid hockey player and noticed frequent falls during a game and while riding his bicycle. Initially the pain was dismissed but soon it grew more intense and would be worse at night time. Tavish would often be unable to sleep all night due to the pain and…
  • image of a stethoscope and a gloved hand holding a bottle marked hpv vaccine
    Guard Yourself from HPV-related Warts and Cancers
    Dr Gayatri Deshpande, senior gynaecologist, cautions against infection of the Human papillomavirus (HPV) transmitted mainly through sexual contact that can cause painful and highly contagious genital warts resulting in a range of cancers in both men and women and advises safe sex to reduce risks. What is Human Papillomavirus (HPV) infection and how do you get it? This is an infection caused by Human Papillomavirus which is a DNA virus. One can catch this infection by sexual contacts which may…
  • Image of a person undergoing radiation therapy
    What Are The Side Effects Of Radiation Therapy?
    And other questions on types of radiation therapy and tips to handle the effects of radiation therapy answered by Dr. Arpana Shukla, Senior Consultant Radiation Oncology, Sterling Cancer Center Ahmedabad 1.   What exactly is Radiation Therapy? Radiation Therapy is a clinical modality mainly dealing with the use of ionizing radiations for the treatment of cancer patients (and occasionally benign diseases). The primary goal is to deliver a precisely measured dose of radiation to a…
  • Image of a man with a mask in a polluted city.
    Air pollution is a Public Health Problem - A Leading Cause of Poor Health and Cancers
    Dr Radha Goyal, Deputy Director of Indian Pollution Control Association (IPCA), New Delhi, shares the research on how the carcinogenic elements in the air we breathe are lethal in more senses than one. The current pollution levels in our country, particularly in Delhi/NCR – how threatening is it for lung cancer cases? The latest urban air quality database released by the World Health Organization (WHO) reconfirms that most Indian cities are becoming death traps because of very high air…
  • Close up of the author Mariyam Raza Haider, caregiver of her father with oral cancer
    Handling Late Night Medical Emergencies
    The most important factor in medical emergencies is to not panic, think calmly and act quickly and effectively. Mariyam Raza Haider, 26, recounts an emergency due to side effects of chemotherapy for her father's treatment of oral cancer and the lessons she learnt from it. This concludes the two-part series. One of the biggest concerns when taking care of a cancer patient on chemotherapy is the bout of side effects. The most common side effects of any form of chemotherapy are — nausea,…
  • Picture of Mariyam Raza Haider whose father has oral cancer
    Ways to De-stress during Chemotherapy Sessions
    Mariyam Raza Haider, 26, gives a first person account of how she makes her father’s chemotherapy cycles for aggressive oral cancer as easy and comfortable as possible. This is the first of a two-part series. Chemotherapy, despite being one of the most rigorous medical treatments, demands a pretty simple administration regime. More often than not, cancer patients spend a few hours at the hospital’s daycare, get the chemo drugs through intravenous catheters, and are then discharged. Most side…