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  • Diversity and Disability
    Diversity and Disability

    Celebrate Life; Celebrate Diversity

    We welcome you to the community page "Celebrating Disability", an online discussion forum where we introduce, discuss, debate as well as campaign and advocate various concepts, perspectives, paradigm shift, models and legal provisions that concern and impact persons with disabilities. The title Celebrating Disability emerges from one of the ideologies of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) to celebrate human diversity and that Disability is a part of human diversity. 

    This online community page aims at demystifying the stigma associated with disability and reinforces the paradigm shift experienced by persons with disabilities from the charity and medical model to the social and developmental model, a holistic development of the society where persons with disabilities are an integral and contributing part and not apart. It will also focus on discussions and debates with regard to legal frameworks that impact persons with disabilities rightfully as well as adversely. The context and connect of UNCRPD with most terminologies & concepts to be discussed in the forum goes without saying. The perspectives of different professionals and their work with persons with disabilities are to be dealt as well. Any requirement for a larger campaign or advocacy may also be analysed in due course of a discussion. 

    This community page "Diversity and Disability" will provide motivational stories and achievements by persons with disabilities on an equal  basis with others, articles by expert persons with disabilities as well as professionals without disabilities on their work and perspective, the gaps in the legal framework and way forward to harmonise the same, strategies/models to implement UNCRPD at every level and a lot more, by way of public discussions, debates and other creative methodology on each article/story. In addition a webinar will be organised every quarterly to discuss the topic of the term. The topics may widely range from different provisions of the Rights of Persons with Disabilities and its connect with UNCRPD & vice versa, evolving concepts on disability, innovations pertaining to products, designs, services, infrastructure, information, communication and technology etc. 

    Supported by Vidya Sagar, Chennai

     

  • A picture of a tree taken by a person with  visual impairment
    Photography For Therapy And Self Esteem
    On World Photography Day, we share how photography has provided therapeutic benefit to cancer patients of all ages, helped increased self esteem and self confidence and stimulated emotions and intellect of the visually impaired.  Geetha Paniker, a breast cancer survivor, shares her views on how various forms of creating art, and even photography, can heal both the mind and the body. I truly believe that photography is an incredibly powerful therapy to heal oneself. It is a passion that…
  • Ignorance Is Not Bliss In Our Condition!
    Priti Shetty, 33 from Mumbai was diagnosed with type III Spinal Muscular Atrophy at age 2 and is a strong proponent of using whatever skills and intellect you have to learn all about your condition and achieve your dreams. Please tell us a bit about your condition I have type III Spinal Muscular Atrophy or SMA. SMA is a genetic disease that causes loss of voluntary muscle movement as the motor nerves get affected. Type III is also known as Kugelberg-Welander disease. What were the early…
  • A young woman in a blue dress standing next to the open car door with a car key in her hand
    Driving Cars As A Way to Independence For Disabled Persons
    Anita Sharma from Jaipur, who has a 70% disability due to Polio, did a PhD from IIM Indore in Disability and Entrepreneurship. Driven by her own passion to drive modified cars and to enable persons with disabilities to be independent, she started a driving school. Anita Sharma on her personal journey and initiative. Your background of polio from a young age, surgeries, calipers. I contracted Polio at a very tender age. When I was just six months old my parents realized something was wrong as I…
  • A woman in a yellow kurta standing with her young son in a white shirt in front of a shop window. Both wear spectacles.
    "It Is Important To Believe In Our Children"
    Pallavi Mehta, 42 talks about the trials and triumphs of taking care of her 11 year old son Divyam who has Fragile X Syndrome, a genetic condition. Please tell us a bit about your son’s condition My son Divyam is 11 years old and is suffering from the Fragile X condition. Fragile X syndrome is a genetic condition that causes a range of developmental problems including learning disabilities and cognitive impairment. He was diagnosed when he was just a year old. What were the early symptoms?…
  • Autism - My Super Power For Modeling: A Live Conversation
    In a free wheeling live conversation, PatientsEngage spoke with Pranav Bakhshy, India's model on the autism spectrum and his mother Anupama on the journey to his goal. Great parenting insights. Now available as a video recording. It all started in 2017 when Pranav Bakhshy expressed a desire to be a model after attending the Velvi Art For Autism Festival. His mother Anupama and sister Nikita guided his journey to support his endeavour to be a model, bringing together his love for dancing, music…
  • A man with black hair and moustache and white tshirt
    Parents Should Always Try And Bring Children With Disabilities Into The Mainstream
    Ameet Bhadrapur, 30 from Bengaluru suffers from 70 per cent hearing loss. But despite his lack of confidence over interaction with people, he is a working professional. I am partially hearing impaired with 70% hearing loss. I can hear some low frequency sounds. I am using behind the ear hearing aids for both the ears. With this I am able to hear most of the sounds. However my speech and pronunciation are not clear. Hence I lack confidence in interacting with others. When were you diagnosed? I…
  • A Father's Wish For Awareness And Inclusion Of Autism
    A dad of a 25 year old adult on the autism spectrum, and a member of the SCAN support group, Chennai shares the challenges faced by his son, the techniques deployed to overcome these and enable him to be an independent young adult. #AutismDad  Today my son is 25 years old, a MBA post graduate with work experience in Human resources from a reputed company.  My son’s childhood days with autism Looking back it has been a roller coaster ride filled with challenges from the time my wife…
  • Are Dads Of Special Needs Children Getting More Involved in Parenting?
    Gopinath Ramakrishnan, Co-Founder and Managing Trustee of Special Child Assistance Network (SCAN), a support group for families of special needs children, reflects on the involvement of Dads in parenting.  When we started the parent support group Special Child Assistance Network (SCAN) in Chennai back in 2015, it was mostly a women and children group. Yes, there were a couple of us dads hanging around, but it was by and large comprised of, and driven by the moms. In fact, the WhatsApp…
  • "We Can All Benefit From Adaptive Clothing!"
    Anita Iyer Narayan, Founder and Managing Trustee of Ekansh Trust, Pune, shares her views on Adaptive Clothing as well as on the AD-DRESS NOW Project, a contest to sensitise the clothes designer as well as the manufacturer about the difficulties that people with disabilities face while dressing independently. Adaptive clothing is clothing specially designed for people with physical disabilities, the elderly, and the infirm who may experience difficulty dressing. It can be because they do not…
  • A vector poster for sex education
    Sexuality Education for Children and Adolescents with Disabilities
    In the second part of this series on Personal Safety and Sexuality Education for children and adolescents with disabilities, Dr. Sangeeta Saksena and Renu Singh of Enfold Trust focus on sexuality education for children and young individuals on the autism spectrum and those with Intellectual disabilities. They even discuss certain myths and concepts.  Read the first part here We begin with a few common terms and concepts used in this article. Sexuality: Derived from Latin ‘secare’ meaning…
Received a request for an OT in Patiala for a 2 year old child with Cerebral Palsy. Any suggestions, recommendations would be welcome Family currently going to PGI Chandigarh for doctor visits thanks 
People tend to develop their personalities from the different things that they get to know and do in their lives, which may also have an impact from time to time. People develop their personalities at all ages and it is a constant shift for every…
Vidya Sagar (Formerly, The Spastics Society of India), a 30 year old non-profit organisation working with  persons  with disabilities , is conducting a 2 Day Expo titled "VaccesS" @ Vidya Sagar, #1, Ranjith Road, Kotturpuram, Chennai - 600…
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