Fibromyalgia Support Community

Prachee Bhosle, 42, who was diagnosed with ankylosing spondylitis and fibromyalgia, two painful rheumatic disorders, shelved her career plans and chose to become a patient leader to raise awareness and advocate for better care and support. She is currently President of Ankylosing Spondylitis Welfare Society.  Please tell us a little bit about yourself, your background? I am a parent to 2 kids, a 14-year-old girl and a 10-year-old boy. Both my kids are homeschooled by me since 2017. After…

Nine years ago, Shruti Singh, 39, was diagnosed with fibromyalgia, an invisible chronic illnesses, that changed her identity from a career woman and passionate outdoor person to a homebound individual. Today, with active rehabilitation she has taken charge of her body once again and now devotes her energy in enlightening others with the debilitating condition. Who am I I am Shruti. Up till a few years ago, my career and my profession defined me. I introduced myself with what I did for a living…

In our next webinar in the #LivingBetter series, Swati Agrawal will talk about her experience of living with Fibromyalgia, an invisible illness. She will talk to us about how the chronic pain affects her emotional and psycho-social health, and the lifestyle choices she makes to manage her health. To know more about Swati, read her account here: It Took 2 Years To Get A Diagnosis  Join us on 25th September, 6PM IST, 8:30PM SG time on PatientsEngage page on Facebook. Just follow our page…

Anita, 50 took 6 years to finally get a diagnosis of Fibromyalgia. She shares her physical and social challenges in detail as well as the interventions that work for her. Early signs and Symptoms: Constant need to rest, low energy levels, and lack of desire to do anything over time were my first symptoms and continue to be my handicap. I first took notice of it when I was at a mall and could just not focus on anything. I had to stop, sit and put my head down for a few minutes to re-focus.…

Aditi Gupta, 23 from Gorakhpur, Uttar Pradesh has been in pain for the last 5 years, battling an invisible condition called Fibromyalgia. She still has not found a cure, but has not given up hope – yet. I suffer from a chronic pain illness called Fibromyalgia. It is an invisible and an incurable condition causes widespread muscle pain, migraine, stiffness, fatigue, morning sickness, insomnia, restless legs, depression and several other symptoms. First Symptoms  I was diagnosed about 3.5…

It was ad in a newspaper that familiarized Anju Gupta, 54, an Indian settled in Canada, to QiGong, a Chinese system of physical exercises and breathing control that helped keep her fibromyalgia in check. Read how she came out a winner. My problem began soon after I migrated to Canada in 1995. Besides, the pressures of settling in a new country, I had a baby to look after. My son was barely six weeks old. It was very stressful time for me. The only saving grace was that I began to steadily shed…

Chronic Fatigue Syndrome and Fibromyalgia have many overlapping symptoms with chronic pain and fatigue being the most common threads.  Dr. Shital Raval explains the differences between the two conditions and the different diagnostic criteria Chronic Fatigue Syndrome or CFS is a medical condition with an unknown cause, presenting initially with constant or recurring fatigue for 6 months or more. Myalgic encephalitis or ME is the now the internationally accepted term for CFS. Fibromyalgia or…

Swati Agrawal, who has Fibromyalgia, appeals to others in the community to start speaking about their invisible illness to raise awareness, remove prejudices and advocate for more equal and friendly world. If you have a story to share, write in to us. You can't see that I am unwell. You can’t tell that I have multiple Chronic Invisible Illnesses by talking to me, or by looking at me. I will tell you the customary "I am fine" to "How are you". This is the story of all spoonies. Our illness is…

Swati Neogy is not lazy. She has a condition called Chronic Fatigue Syndrome, which causes extreme fatigue, together with allied problems like body ache, hypertension and sugar level fluctuations and even partial memory loss. She has had to battle misleading perceptions, even by doctors. Finally she now accepts her condition and wishes to spread awareness. Swati, please tell us a bit about your condition  I am a patient of SEID/CFS (Systemic Exertion Intolerance Disease/Chronic Fatigue…

Swati Agrawal, a fibromyalgia patient keenly wishes for more awareness and treatment for this incurable, misdiagnosed and misunderstood, invisible illness. Find out how she maintains her health. Listen to her in the video below. New Delhi, 12 May 2016: Well, you know what they say about best laid schemes of mice. In my case, that pretty much sums up Fibromyalgia. In fact, I think Robert Burns would have been impressed with how earnestly fibromyalgia made the schemes of my life go awry. Chronic…